Basically FX

Living with Fragile X Syndrome

I feel like such a neglectful blogger!

Umma | March 22, 2008

Don’t you just hate it when work gets in the way of the rest of your life?  I’m a corporate paralegal and though I have a limited client group compared to most (only 1 client) they’re a very busy, very large group.  I am responsible for 5 publicly traded companies and their approximately 450 privately [...]

I should not encourage this!

Umma | March 17, 2008

Monkey is clearly feeling better since yesterday.  It’s so nice to see his “spark” back!  Last night Duhdee and I were sharing a hug in the kitchen.  Monkey was in another room watching TV but his radar went off and he came running to break up the lovefest.  You see, in this house, only Monkey [...]

We’re really in for it with this kid!

Umma | March 15, 2008

I checked my e-mail today and found an e-mail from YouTube Support thanking me for reporting a server error.  At first I thought it was spam but then I looked a bit closer and saw that someone HAD sent YouTube a report, from my YouTube account, stating “kk ll.”
First of all, there is only one [...]

Isn’t it always the way?

Umma | March 14, 2008

We’re back to crappy sleep here but there is a reason.  Monkey and I are sick, oh the joy! 
We’ve managed to come down with some sort of virus that includes a racking cough, fever and a general feeling of yuckiness.  We’re both tired but we can’t sleep well because we’re so uncomfortable.  Work is so very [...]

Rough patch.

Umma | March 9, 2008

I’ve hit a rough patch here. We had another appointment at the Fragile X clinic and they always throw me off no matter how nice the folks there are. Having to outline, in great detail, all the ways Monkey isn’t “normal” really gets to me. It makes all of the Fragile X [...]