Fragile X LINKS Group of Eastern Massachusetts
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By Melissa, on June 19th, 2008
We also did not reject it. I left a note for the teacher which pointed out that we had agreed to sign the new IEP on very specific conditions and that they had dramatically exceeded those conditions. We also let them know we will have a response after we discuss the situation with our advocate.
. . . → Read More: We did not sign it.
By Melissa, on June 19th, 2008
June 17 and 18, 2008. Ha. Read the posts, these are just about the worst days we’ve had since the diagnosis. Our stress level is at the very highest. We’re worried, angry and feeling isolated. But there was an awesome moment in there, that’s what I’m going to share here.
We’ve been working very . . . → Read More: For today’s FX Memory we’re going wayyyyy back to…
By Melissa, on June 18th, 2008
Ok, fine, I AM crying. Can anyone please explain to me why every thing has to be so complicated? We agreed to update Monkey’s IEP. We agreed to update his goals/benchmarks and add the summer preschool classroom. We specifically said at the meeting that we would not sign an IEP that changed anything other . . . → Read More: I could just cry.
By Melissa, on June 18th, 2008
The new IEP was dropped off, I haven’t reviewed it yet so I have no idea if we can sign it or not.
As we were discussing what we need to take with us to the clinic tomorrow I mentioned that we should write up a progress report b/c it was given orally yesterday . . . → Read More: Nothing to do but bang my head.
By Melissa, on June 18th, 2008
I don’t even know where to begin. I know I have a tendency to praise the district in general and criticise the teacher and I’m sure that doesn’t seem fair to some. It may strike folks as a “shoot the messenger” issue. I try, very hard, to give his teacher credit for how much . . . → Read More: So, about our IEP meeting yesterday…
By Melissa, on June 16th, 2008
I’m ready to be done with school for a while but no such luck. Tomorrow is our IEP meeting to discuss goals for next year and how to implement them. I wish I could say I was excited but you all know that excitement isn’t an emotion that accompanies these sorts of appointments.
Last . . . → Read More: It’s the last day of school.
By Melissa, on June 15th, 2008
For all the dad’s out there that work hard, kiss skinned knees, spin their kids’ wildly through the air making them shreek with joy and excitement, read bedtime stories, demonstrate pitching techniques and drink tea with their pinkies extended to the delight of their little girls…today is your day. Enjoy it and know . . . → Read More: Happy Father’s Day!
By Melissa, on June 14th, 2008
Duhdee and I have been talking the last few weeks about whether we want Monkey to go to summer session this year or not. We were offered the 6 week summer session last year as well but declined because he was transitioning from EI to school as it was and we really didn’t want . . . → Read More: Summer session or no summer session.
By Melissa, on June 13th, 2008
Yesterday, we dropped Monkey off at pre-school as we do every morning. I walked a few steps ahead of Monkey and Duhdee, who were holding hands, doling out M&Ms to induce Monkey to keep moving forward. It’s a great system that works very well for us.
Normally, Monkey eats the M’s as fast as I . . . → Read More: No one was more shocked than we.
By Melissa, on June 12th, 2008
Between starting EI and receiving the FX diagnosis we purchased two Baby Signing Time DVDs but we didn’t use them. Duhdee and I had decided early on that we wouldn’t let Monkey watch TV until he was 2, at least. We received the diagnosis a few weeks before his 2nd birthday and we finally . . . → Read More: Discovering ASL.
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