Fragile X LINKS Group of Eastern Massachusetts
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By Melissa, on July 30th, 2008
Yet another rough night last night but this time I could have slept if Monkey had let us. He had an upset tummy yesterday and his skin is so sensitive that he had a slight diaper rash bloom. Last night it woke him up and he was sad and tired and in pain. Five . . . → Read More: Eyes glazing over, send caffeine.
By Melissa, on July 29th, 2008
I went to bed “early” for me and then lost 2 hours to the television (honestly, I just wanted to watch the news!) Now I’m awake again only 4.5 hours later. Another long day of work ahead of me, bummer.
This morning I woke up thinking that I don’t know what a “typical” 4 . . . → Read More: Awake again!
By Melissa, on July 28th, 2008
From Wikipedia:
Severe hot flashes can make it difficult to get a full night’s sleep (often characterized as insomnia), which in turn can affect mood, impair concentration, and cause other physical problems. When hot flashes occur at night, they are called “night sweats.” As estrogen is typically lowest at night, some women get night . . . → Read More: Oh, haha. Maybe I need to see my dr?
By Melissa, on July 28th, 2008
It’s a little after 1AM and I can’t sleep, again. I do have a cold and that is playing a part but that’s not all by a long shot. Every time I have woken up in the last two nights my jaw has been clenched so tightly that I can barely open it. I . . . → Read More: Still hanging in.
By Melissa, on July 23rd, 2008
just deleted it without posting?
I am having a very bad day emotionally today. I was triggered by two silly situations and I vomited it all upon the screen, proofed it and agreed that all the emotions were appropriately described. I dug deep into a lot of personal issues about my childhood, being picked . . . → Read More: Have you ever written a long post and then
By Melissa, on July 22nd, 2008
I am the poster child for the necessity of this day. Although Fragile X has been in my family for many generations and showed its face for the first time in full mutation form in my generation, I was completely unaware of its existence until my own son was . . . → Read More: National Fragile X Awareness Day
By Melissa, on July 22nd, 2008
I am a huge fan of Snickerdoodles. When I was in college, we had tea every Friday at 4. There was always a variety of cookies and other snacks and my very favorite was the Snickerdoodle. I’d never had, or even heard of, a Snickerdoodle before college. After college I began looking for a . . . → Read More: Snickerdoodles.
By Melissa, on July 21st, 2008
Or, more precisely, what do you give a man who buys himself everything he wants? This is the dilemma we face each year with my father. Christmas is usually pretty easy, we hand over IOUs to my mom and dad for Red Sox tickets and then plan to spend a couple DAYS waiting in . . . → Read More: What do you give a man who has everything?
By Melissa, on July 17th, 2008
Monkey didn’t watch television, dvds, play with electronic games, etc. before his second birthday. Duhdee and I had elected to follow the APA’s recommendations on the matter and, besides that, after we began receiving EI services there really wasn’t any TIME for such things in Monkey’s day.
After his second birthday we gradually loosened . . . → Read More: One small change is paying off big time here.
By Melissa, on July 16th, 2008
Monkey has always been very affectionate with me. He loves to cuddle, hug, tickle, etc. He will accept endless kisses from me to his cheeks and to the rest of his body but he can’t tolerate someone face to face with him, not even his Umma. I tried to teach him the mechanics of kissing. . . . → Read More: How to make 2 moms cry.
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