Home from school.

Monkey woke up yesterday with a runny nose.  He otherwise seemed fine so we sent him to school.  His teacher called after he’d been there for a while to report that he had been unhappy most of the morning and that he had fallen asleep, in the gym, during free play.  She wanted to . . . → Read More: Home from school.

Fragile X 5K

Been there, done that, got the t-shirt!

I’m so happy we did it.  We didn’t come even close to placing obviously but I was very pleased with how we did considering we’ve only been running for the last 10 weeks.

I think we placed 29 and 30 err…make that 39 and 40 overall, Duhdee . . . → Read More: Fragile X 5K

I don’t know what to write about!

It seems like school issues/drama have been totally taking over our lives for the last 5 months.  Now that we have Monkey in a great classroom and he’s being successful I’ve hit a bit of a wall.  We are so thrilled with how things are going right now, a huge weight has been lifted from . . . → Read More: I don’t know what to write about!

He did it AGAIN!

We talked up how well he did yesterday before we left this morning and we shared some high fives.  He asked me to carry him down the stairs (“Ride?”) and I agreed.  I let him know that I was carrying him down the stairs because he did SUCH a good job walking to class . . . → Read More: He did it AGAIN!


Monkey walked into his classroom today without once sitting down to protest.  He whined a few times in the car but he’s now taking deep breaths with Duhdee and I to calm down so it really was very minimal. 

It was the best transition he’s had since last June.  We are SO excited!  Go . . . → Read More: HE DID IT!


This has been one of the longest weeks ever.  Of course, every week seems that way right now 🙂

Monkey seems to be settling in to his new classroom.  He’s still not able to walk all the way to the classroom in the mornings but once we’re there he jumps right in to activities.  . . . → Read More: TGIF.

Transition? We don’t need no stinking transition!

Despite the assurances given to us by his IEP team leader that they would work out a gradual transition to avoid upsetting Monkey, Monkey is in his new classroom after only a single day of support.  We should have expected this, right?

What we had expected:  A few days (to be determined by Monkey’s . . . → Read More: Transition? We don’t need no stinking transition!

This is ponderous man. Really ponderous.*

I’m full of thoughts that go nowhere right now.  There are things going on, that I am only very tangentally connected to, that are bringing up a lot of fear and stress.  One of Duhdee’s friends passed away very suddenly last week leaving behind two kids and a wife.   My heart aches for them . . . → Read More: This is ponderous man. Really ponderous.*

New FX related blogs

I just wanted to point out that I’ve added a couple new blogs there to the right that you folks may be interested in. 

Love and Survival with Fragile X and The X Mom are my latest additions. 

If anyone has a blog that is NOT in my blog roll and wants to be . . . → Read More: New FX related blogs