We started Monkey on folic acid therapy in August of last year. I can’t believe I didn’t mention this at the time, lol. Anyway, the literature all says that it takes a minimum of 4 months for the effects to show up, if any, and we’re well past that mark. In fact, the 4 month . . . → Read More: Folic Acid
|
|||||
 |
The worst thing about having an only child with FXS is that I never know what is “normal” behavior and what is maybe a sign of problems. For instance, this weekend Monkey was pretty much glued to me. I said on more than one occasion that I wished I had a way to tie him . . . → Read More: Normal developmental stage? I’m so excited, Monkey is doing so well “holding it” during the day and it seems that he’s able to do the same overnight as well, very cool! On Sunday, when the plumber was downstairs cutting the cast iron pipes below the bathroom floor, we put Monkey in a diaper. The noise in the . . . → Read More: Another dry morning! We have a nearly functioning shower! Duhdee just needs to put the…uh…piece….back on. I am no handywoman, obviously. Grampy still has a hole in his ceiling and his wallpaper also needs to be patched but Duhdee will get to that tomorrow. The plumber insisted on showing us what he snaked out of our pipes. . . . → Read More: The plumber has left the building! Duhdee is down in Grampy’s bathroom tearing out his ceiling. The leak damaged the plaster so it needed to be repaired anyway but the added bonus is that the plumber prefers to go through the ceiling anyway! That saves us having to rip up our bathroom floor and remove our toilet. Yay! Grampy wants . . . → Read More: T-minus 20 minutes until the arrival of the plumber! We had so much fun today, both Duhdee and I thanked Monkey for such a great day as we wished him good night. What did we do? We cleaned the basement. Seriously. We spent 5 hours in the basement sorting through toys, clothes, books and random crap. We trashed tons of stuff and we . . . → Read More: What an awesome day! We have not been worrying about this, he will do it when he can. We encourage it verbally and celebrate it when it happens but when it doesn’t, it’s not an issue. This morning he woke me up around 7:30 and we did our normal weekend morning routine. I gave him some Cheerios and . . . → Read More: He stayed dry all night! The plumbing here sucks is not good. Duhdee ran a snake through the pipes because the tub was draining very slowly. Now we have a waterfall in the basement! Awesome. And the plumber? Well, he just had elbow surgery earlier this week so he’s out of action for the next two weeks. Am I . . . → Read More: We’ve been wondering and now we know. Today is the 100th day of school celebration (school wide), Superhero Day (school wide/part of Spirit Week - He’s wearing a Spiderman t-shirt and underwear though he has no clue who Spiderman is), Valentine’s Day and a good-bye party for one of his assistant teachers. Phew. We just heard yesterday about the Valentine’s Day bit . . . → Read More: A busy day today for Monkey! We have a built-in cabinet in our dining room and it’s filled with framed pictures of friends and family. Two days ago Monkey began pointing at one of the photos and exclaiming “Yick!” We are so excited! You see, he’s pointing at a picture of one of his cousins and NAMING him. This morning . . . → Read More: Yick! It’s not what you’d expect. |
||||
|
Copyright © 2012 Basically FX - All Rights Reserved |
|||||
