Basically FX

Living with Fragile X Syndrome

The world needs more weekend and less week.

Umma | August 23, 2009

Someone start a petition   We made the most of what we had this time around.
Minutes after I left work Friday and, fortunately, moments after I stepped onto the subway, I received an e-mail message that nearly put an end to all of our weekend plans!  But, since I rock, I managed to do [...]

Fun in Madison!

Umma | August 19, 2009

While we were in Madison we had our afternoons free. We spent a lot of time here:

The best thing about the pool was that the shallow end was only 3 FT deep so Monkey could walk around that end on his own. He was really unsure about it at first but once he gained some [...]

Two new things that just slay me…

Umma | August 17, 2009

This he started a couple weeks ago and now this is what he calls Duhdee when he wants something. He must have picked it up from the neighbors b/c I never use Duhdee’s first name!

This he picked up from me when we were playing in the hotel pool last week, it cracks me [...]

Goodness, it’s been a busy slog here!

Umma | August 17, 2009

But we’re back, for reals this time.
First things first, Monkey’s hand is almost entirely healed.  There were  a few really gross days of lots of peeling skin but he’s much better now.  It never really seemed to bother him after that first day, I guess that high pain tolerance comes in handy for some things.
For [...]

Not the way we want to increase his vocabulary!

Umma | August 3, 2009

He already knew the word “hot,” now he knows “burn” too.  Ugh.
Monkey grabbed my travel mug of  hot tea this AM and scalded his hand.  His poor little fingers are red and he has two blisters.  They don’t think there will be any long-term effects, we just need to keep it clean and watch for [...]