Simply amazed…

Eric relayed the following story to me when they picked me up after work.

Caleb’s teacher (who is awesomeness, dipped in awesomesauce…she came to hang out with Caleb Monday after school so we could go to volunteer training for the fragile X clinic!) has been working with him on not blurting out questions…also on . . . → Read More: Simply amazed…

An update, in pictures…

Balancing hope.

Have you ever read, “Flowers for Algernon?” I remember reading it in middle school.

“The story is told through a series of journal entries written by the story’s protagonist, Charlie Gordon, a man with an IQ of 68 who works a menial job as a janitor in a factory. He is selected to undergo . . . → Read More: Balancing hope.

Every day…

Every day, he makes me laugh. A dozen times a day he says something to make me laugh and I think…I don’t want to forget this, I should blog this. Yet, I’m too busy soaking up his awesomeness…filling up my tank…just in case. Just in case…

We haven’t started titrating down yet. We may . . . → Read More: Every day…

Fragile X and Autism Families for STX209

Hey everyone, if you’ve missed it, the fragile X parents have been blowing up social and traditional media talking about the sudden termination of the STX209 extension trial we are participating in. We have our date to visit our clinic, turn over our supply of medication and get a titration package…it’s so nice to . . . → Read More: Fragile X and Autism Families for STX209