Basically FX

Living with Fragile X Syndrome

How to use this strength?

Umma | August 31, 2010

After a brief flirtation with Chuggington, Monkey is, once again, obsessed with the Penguins of Madagascar.   This makes me very happy because those pen-gu-ins1 are hysterical.  Duhdee and I quote them.  A lot. Monkey also quotes them.  A lot.  Right now his favorite episode is “Hard Boiled Eggy.”  We hear a lot of “Mort!” and “My [...]

It was a big day here!

Umma | August 28, 2010

First, Duhdee totally broke my heart when he said no to this… I don’t understand how anyone could say no to an 8 month old Australian Shepherd mix.  Sure they are flipping INSANE but they’re insane in that “OMG, let’s do it again” kind of way.  There are very few dog breeds that I’m willing [...]

This entry is brought to you by one adorable Monkey.

Umma | August 27, 2010

I am laying in my bed with my laptop on my lap.  My son is laying next to me using my shoulder as a pillow.  He is sleepy as sleepy can be but he’s still awake.  So much for T.enex helping him sleep.  He wants me to type, he loves watching the letters crawl across [...]

One Day Fragile X Conference in Connecticut

Umma | August 27, 2010

The Fragile X Society of Connecticut is hosting a one day conference again this October!  Marcia Braden, Ph.D. (Colorado Spring, CO) Karen Riley, Ph.D. (University of Denver), Don Bailey, Ph.D. (RTI International, NC), Sharyn Lincoln, M.S., CGC (Children’s Hospital Boston) and Jonathan Picker, MB ChB, Ph.D. (Children’s Hospital Boston) will all be presenting.  See the [...]

A conference call.

Umma | August 26, 2010

Tonight Duhdee and I had a conference call with the developmental pediatrician.  We caught up on what we’ve been seeing from Monkey over the last med-free week, none of which is particularly great.  His sleeping which had been tanking continued to do so with a vengeance.  Not only were the night wakings continuing but we [...]