The registration and schedule page for the 13th International Fragile X Conference, scheduled for July 25th through July 29th, 2012 in Miami, FL, is UP!
You can save $110 by signing up early!
13th International Fragile X Conference
|
|||||
 |
It’s hard to believe but, this morning, Eric and I attended an IEP meeting with Monkey’s teachers and his specialists and we left the meeting laughing. We have meetings scheduled every 4-6 weeks per his IEP and we love being able to touch base so frequently. We have daily contact with his main teacher . . . → Read More: Pinch me. First, let me say…if you are on the fence and you are letting your carrier anxiety hold you back just pop on over to the NFXF’s beautiful, new website right now and sign up. Do it real quick, don’t think. Just…do it. Advocacy Day is March 6th and 7th1 in Washington D.C. http://advocacy.fragilex.org/ad2012/register-now/ OK, . . . → Read More: So you have decided to attend Advocacy Day! I don’t know how else to describe myself these days but to say that I am at loose ends. I’m not very good at grieving, I guess. I expected the tears. I expected to keep being brought up short when my Bubba wasn’t where I expected him to be. I expected the emptiness. I . . . → Read More: At loose ends. Since Wednesday of last week, Monkey has been feeling punky1. He has a nasty, dry cough that once it starts…normally ends in puke. Hey! Have you ever seen a kid cough and puke at the same time??? Oh, man is that FUN! You need a fire hose for clean up. Ugh. Mixed in here . . . → Read More: Sicky boy I call that a good day. For those who are still unaware, we had to say goodbye to Copper last Friday. Even after everything we had been through with him, even knowing for weeks that our time together was limited, I was still surprised by how quickly it all happened at the end. At . . . → Read More: I laughed more than I cried today. We were “reluctant” to move Monkey to his new school, you may recall. We I threw more than one hissy fit in which I wailed over the unfairness of it all. I do still think it was unfair for the district to assign him to 3 schools in 4 years but now, with the . . . → Read More: It’s snowballing, in a good way!  No money fairy is going to swoop down and deposit $1,000,000 in my account. No job fairy is going to flit through and drop a raise, promotion or career change in my lap. FXS fairies are not going to swarm my friends and family and revise what FXS has changed or return what was . . . → Read More: Welcome to 2012! Nothing will change.  On the first Wednesday night of the month I was out to dinner with some of my most favorite ladies in the world and one of them had brought up this “elf thing.” Most of us had not heard of this phenomena. She described it in great detail and not terribly positively either, I . . . → Read More: Saved by an Elf. |
||||
|
Copyright © 2012 Basically FX - All Rights Reserved |
|||||
