We were “reluctant” to move Monkey to his new school, you may recall. We I threw more than one hissy fit in which I wailed over the unfairness of it all. I do still think it was unfair for the district to assign him to 3 schools in 4 years but now, with the . . . → Read More: It’s snowballing, in a good way!
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Duhdee and I came to a decision, finally, on the clinical trial. We decided that Monkey is doing so amazingly well on C.elexa (increased language, happier in general) *and* that since he’s just starting at a new school…it wasn’t fair to change his medications at this time. Soooooo…we emailed the amazing Dr. Nasir and asked him about . . . → Read More: How is this for a wrench in the works? We here at Chez Monkey are very excited that there will be a nearby clinic for Seaside Therapeutics’ Phase III STX209 trial. We have spoken to the researcher at UMASS in Worcester and he’s given us the OK to share with you what he told us in our screening call. Duhdee and I are . . . → Read More: STX209 – You’ve heard of it, right? What is sweeter than maple syrup? Getting to spend a day with my family, driving around southern Maine! Today was Maine Maple Syrup Sunday, one Sunday each year dozens of sugar shacks in Maine throw open their doors and welcome in the general public. They demonstrate how maple syrup is made, they often sell . . . → Read More: Sweeter than maple syrup. I’m not just feeling bitter over the fact that we still have a MOUNTAIN in our front yard from the last two storms, though that doesn’t help my mental status. I need to see some green grass soon, dammit! Anyway. The real issue here is that between winter break and the 3 snowdays and . . . → Read More: Another @%#^ing snowday. Monkey is ahead of the game this week at least in regards to his weekly fade. He typically starts the week a little rough, it is hard to go back to school after a weekend, right? But he’ll rebound and have a good Monday (minus the AM transition), Tuesday, Wednesday and Thursday. By Friday, he’s tired . . . → Read More: He’s ahead of schedule. and I witnessed it. Yip-frickin-ee. This has become the weekend of no sleep, this isn’t how it’s supposed to work. We finally have an Rx to counter the night wakings, it’s supposed to be better! *sigh* Monkey’s internal sleep-clock hasn’t gotten the memo though. Even with the new Rx he’s still waking around 3 . . . → Read More: A new day has dawned… I am laying in my bed with my laptop on my lap. My son is laying next to me using my shoulder as a pillow. He is sleepy as sleepy can be but he’s still awake. So much for T.enex helping him sleep. He wants me to type, he loves watching the letters crawl . . . → Read More: This entry is brought to you by one adorable Monkey. Tonight Duhdee and I had a conference call with the developmental pediatrician. We caught up on what we’ve been seeing from Monkey over the last med-free week, none of which is particularly great. His sleeping which had been tanking continued to do so with a vengeance. Not only were the night wakings continuing but . . . → Read More: A conference call. I feel as though we’re in a pretty good place. We may not know exactly how to address the issues we see but I think we’re getting close. As we all know, how to treat an issue varies greatly from individual to individual. I think we have come quite a long way this year . . . → Read More: A few thoughts from our clinic visits. |
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