Fragile X LINKS Group of Eastern Massachusetts

Fragile X LINKS Group of Eastern Massachusetts

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Borrring!

That pretty much sums up the last week or so.  After a busy July, we went into hibernation mode here at Chez Monkey.  We’ve been bored and boring, gotta love that!  It’s not often families like ours get to indulge in doing NOTHING!

Our hibernation period is over though.  It was killed by guilt . . . → Read More: Borrring!

This should really be two posts, just warning you.

It’s a longun’. 

After our last appointment with the developmental pediatrician we’ve decided that the medication we’ve been monkeying (ha! I crack me up) around with for the last few months is not The One.  We’ve switched to a new generic stimulant medication but not F.ocalin which had been the plan.  Why?  Because my insurance . . . → Read More: This should really be two posts, just warning you.

We are an anomaly, but we are not crazy.

We visited with the developmental pediatrician this morning.  I spent last night poring over the daily reports we get from the teacher.  I had been a little worried that maybe we were only seeing a change because we expected to, you know?  I always second guess myself

Our daily reports are a chart, . . . → Read More: We are an anomaly, but we are not crazy.

Tomorrow…

Tomorrow morning we have yet another follow-up appointment with our developmental pediatrician.  We’re going to have to tell him that…oh, wait…did I forget to mention this?  We stopped giving him the medication weeks ago. 

Once we switched from the initial twice a day formula to the extended release formula all the benefits seemed to . . . → Read More: Tomorrow…

We’re having doubts about the medication.

When we first started Monkey on the R*italin we saw a really big improvement in his eye contact.  The teachers noticed the increased eye contact as well and also noticed that his speech was more on topic.  We were all very excited. 

We did notice that he was having a bit of a down . . . → Read More: We’re having doubts about the medication.

Follow-up visit.

This morning we had a follow-up visit with the developmental pediatrician who has prescribed Monkey’s medication. 

He looked at the weekly reports that the teacher has been filling out.  He was impressed with the depth of information that his teacher provides, she adds explanatory notes rather than just rating Monkey on a scale of . . . → Read More: Follow-up visit.

Yet another update on Monkey’s progress.

Monkey had 4 days of school last week.  The comments we received from the teacher were consistent throughout the week.  She said:

his speech is increased he is more attentive he is still as distractible he is still impulsive

So…we achieved the two main goals we had in starting the stimulant but didn’t address . . . → Read More: Yet another update on Monkey’s progress.

Conclusions: Uncertain.

Monkey had his first day of school now that he’s taking the stimulant.  Today is probably a very bad day to expect anything due to the time change.  We had to PRY his little bottom out of his bed this morning at 7:30!  He never sleeps to 7:30!

Anyway, the teacher reported at pickup . . . → Read More: Conclusions: Uncertain.

Day 1, done.

So, I put on my big girl panties yesterday and gave the Monkey man his medication.

We had a good day.  I wasn’t sure if it was having a small effect or if it was wishful thinking.  Duhdee was convinced it was working in the morning when Monkey helped him make coffee and, at . . . → Read More: Day 1, done.