Fragile X LINKS Group of Eastern Massachusetts

Fragile X LINKS Group of Eastern Massachusetts

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I only show up when I need something!

I’m not sure where my writer’s block is coming from, it’s incredibly frustrating to have so much to say and no way to get it from my brain to the screen. Perhaps more wine will help? Or perhaps less? HAHA! Ugh.

Anyway… I need something *SHOCKER*, I know.

I would like to ask each . . . → Read More: I only show up when I need something!

So you have decided to attend Advocacy Day!

First, let me say…if you are on the fence and you are letting your carrier anxiety hold you back just pop on over to the NFXF’s beautiful, new website right now and sign up. Do it real quick, don’t think. Just…do it. Advocacy Day is March 6th and 7th1 in Washington D.C.

http://advocacy.fragilex.org/ad2012/register-now/

OK, . . . → Read More: So you have decided to attend Advocacy Day!

We’re baaaack!

I started to write a blog post about our trip to Washington, D.C. last week and it’s now at four pages and counting. Hmmm. Anyone got a few hours to hear about how AWESOME it was? No? Fine.

To sum up. Advocacy Day: It rocks.

The only thing that rocks harder than a chance . . . → Read More: We’re baaaack!

What is next?

So, we’re all caught up on last week. It’s time to talk…another trip, lol.

Monkey went to school today and after school Duhdee will drive him to Maine to spend the next 3 nights with his grandparents! He absolutely loves going to “Grammy’s house” and this trip will be extra fun, I think. Grampa . . . → Read More: What is next?