Umma | November 28, 2008
Amazing is currently the most overused word in our house. We’ve used it about Monkey’s behavior at family gatherings, his newly emerging participation at school and his always creative communication strategies. He really just seems to be on a roll these days.
Monkey had yet another amazing day yesterday. The three of us stayed home all [...]
Category: Fragile X Memories, Life with Fragile X Syndrome |
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Umma | November 4, 2008
GO VOTE. I don’t care who you vote for*, just do it.
There are tons of freebies out there for anyone who brings proof of voting, just to sweeten the pot. I’ve heard about Chick-Fil-A, Starbucks, Ben & Jerry’s, Krispy Kreme and even an S*E*X* toy shop in NY and Seattle, haha!
Loving this too
Lyrics [...]
Category: Fragile X Memories, Life with Fragile X Syndrome |
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Umma | June 26, 2008
This is a Fragile X Memory from before our Fragile X diagnosis.
At Monkey’s 12 month check-up his pediatrician was a bit concerned about his lack of babbling. She asked us to set up another check-up for 15 months so that we could gauge his progress. She reassured us and told us not to worry. When [...]
Category: Fragile X Memories |
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Umma | June 19, 2008
June 17 and 18, 2008. Ha. Read the posts, these are just about the worst days we’ve had since the diagnosis. Our stress level is at the very highest. We’re worried, angry and feeling isolated. But there was an awesome moment in there, that’s what I’m going to share here.
We’ve been working very hard to [...]
Category: Fragile X Memories |
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Umma | June 12, 2008
Between starting EI and receiving the FX diagnosis we purchased two Baby Signing Time DVDs but we didn’t use them. Duhdee and I had decided early on that we wouldn’t let Monkey watch TV until he was 2, at least. We received the diagnosis a few weeks before his 2nd birthday and we [...]
Category: Fragile X Memories |
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