Fragile X LINKS Group of Eastern Massachusetts

Fragile X LINKS Group of Eastern Massachusetts

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Oh, I needed this!

The ladies were trying to get me to blog last night but I was too busy nearly peeing my pants. This is just an inevitable occurrence when you take four moms and introduce much hilarity1.

I wish I had amazing images of the gorgeous mountain scenery and maybe a few shots of us posing . . . → Read More: Oh, I needed this!

We’re going back to Madison!

Wayyy back in 20081 we were accepted into our first research study at the Waisman Center. We traveled in August 2009 for our first visit and we absolutely loved Madison! It is a great city and I would love to be going back in the summer. Alas, the 2nd visit is done as an . . . → Read More: We’re going back to Madison!

Amazing.

Amazing is currently the most overused word in our house.  We’ve used it about Monkey’s behavior at family gatherings, his newly emerging participation at school and his always creative communication strategies.  He really just seems to be on a roll these days.

Monkey had yet another amazing day yesterday.  The three of us stayed . . . → Read More: Amazing.

Here enters the cavalry…

This is a Fragile X Memory from before our Fragile X diagnosis.

At Monkey’s 12 month check-up his pediatrician was a bit concerned about his lack of babbling.  She asked us to set up another check-up for 15 months so that we could gauge his progress.  She reassured us and told us not to . . . → Read More: Here enters the cavalry…

For today’s FX Memory we’re going wayyyyy back to…

June 17 and 18, 2008.  Ha.  Read the posts, these are just about the worst days we’ve had since the diagnosis.  Our stress level is at the very highest.  We’re worried, angry and feeling isolated.  But there was an awesome moment in there, that’s what I’m going to share here.

We’ve been working very . . . → Read More: For today’s FX Memory we’re going wayyyyy back to…

Discovering ASL.

Between starting EI and receiving the FX diagnosis we purchased two Baby Signing Time DVDs but we didn’t use them. Duhdee and I had decided early on that we wouldn’t let Monkey watch TV until he was 2, at least. We received the diagnosis a few weeks before his 2nd birthday and we finally . . . → Read More: Discovering ASL.

Depression round…two?

Posts about my previous treatment for depression can be found here: Part 1 and Part 2.

I am not sure this really was round two for me.  I had struggled with depression for so long before I hit bottom and needed treatment in my mid-20′s but it was not a constant feeling of depression.  I . . . → Read More: Depression round…two?

A migraine saved my life (part 2)

(This is an FX Memory, from before I knew I was a carrier, read Part one here: A migraine saved my life.)

After my intake evaluation it was a relief to finally be told that they wanted to admit me. My parents were totally shell shocked by how badly I was doing, I am . . . → Read More: A migraine saved my life (part 2)

Our regularly scheduled FX Memory is interrupted…

by Monkey’s BIRTHDAY!

How did it get so late so soon? It’s night before its afternoon. December is here before its June. My goodness how the time has flewn. How did it get so late so soon? -Dr. Seuss

Photo courtesy of Megan George. Happy 4th birthday little . . . → Read More: Our regularly scheduled FX Memory is interrupted…

A migraine saved my life.

(This is an FX Memory, from before I knew I was a carrier.)

I’ve struggled with depression since my teens, possibly longer but it was in my teens that I first recognized it for what it was. For ten years I muddled along and then I simply could not take one more step. I had hit a . . . → Read More: A migraine saved my life.