Experiment takes aim at genetic learning disorder – The Boston Globe
Umma | February 2, 2010
This is EVERYWHERE right now, I love it! Experiment takes aim at genetic learning disorder – The Boston Globe Posted using ShareThis
.: 2010 Connecticut Fragile X Conference :.
.: Fragile X Awareness Day 2010 :.
.: Floor Speech: 2010 Advocacy Day :.
.: Congressman Gregg Harper’s PSA :.
.: Living With Fragile X :.
Resources, Links, Therapies & Supplements
Umma | December 18, 2009
I’ve started a list of resources, links, therapies & supplements that I’ve heard about from other members of the Fragile X community. You can visit it here: Resources, Links, Therapies & Supplements There is a link to it over to the right as well.
Pssst, hey you!
Umma | December 17, 2009
You need party favors, I know you do! Check out the site PrettyFavors.com (there is a handy link over there on the right in the sidebar.) All proceeds benefit Fragile X research and awareness! There are some really cute things available!
Not directly FX related but it has potential.
Umma | November 6, 2009
Gene therapy makes major stride in ‘Lorenzo’s Oil’ disease In the third gene-therapy success of recent weeks, French researchers have arrested the progression of the rare and fatal degenerative disorder adrenoleukodystrophy, which was at the heart of the popular movie “Lorenzo’s Oil.” The disease has stabilized in two boys who were 7 years old when [...]
Clinical Tests Begin on Medication to Correct Fragile X Defect
Umma | November 3, 2009
See here for the official release. Clinical Tests Begin on Medication to Correct Fragile X Defect NIH-supported scientists at Seaside Therapeutics in Cambridge, Mass., are beginning a clinical trial of a potential medication designed to correct a central neurochemical defect underlying Fragile X syndrome, the most common inherited cause of intellectual disability. There has to [...]