I so desperately want to invite Monkey’s last IEP team leader to visit him at the new school. I want her to see what he is capable of. I want her to consider that perhaps they didn’t handle him1 in the best way possible. I want her to see that she still has things . . . → Read More: He does belong. If you don’t believe me, ask that kid.
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I never expected to be in a place where I would completely and utterly forget that we had an IEP meeting approaching. After all the battles, I had become accustomed to days or weeks of preparation and fretting before each meeting. We would consult with our advocate, we would research, we would pour over . . . → Read More: Oh, oops! We have an IEP meeting today?  I’ve written about our yearly adventure to find a Christmas tree each year1. It’s one of our favorite Christmas traditions, one of the few traditional Christmas activities we can enjoy just like everyone else. In many ways, Christmas is a season that seems particularly designed to hurt parents of kids with special needs. We . . . → Read More: The Great Christmas Tree Hunt of 2011. Soooo, I have yet another post about the conference…bored yet? It’s that or whine about how much it sucks that Monkey is sick. Again. It’s viral, says the doctor so we just have to wait it out *sigh* Poor kid. Hmmm, looks like I whined about that anyway…so here is your reward! On Saturday . . . → Read More: I’m just here to help. Yesterday I mentioned that sometimes I start to think that, when it comes to fragile x, “I’m all that, a bag of chips and a slice of pumpkin cheesecake.” Something happened at the conference on Saturday that left me feeling completely humbled though. Andy Selinger1 mentioned that there was a newly diagnosed family in . . . → Read More: Not all that, a bag of chips and a slice of pumpkin cheesecake. I’m the first to admit that I don’t know anything everything about fragile x but sometimes I start to slide a little bit towards complacency and think I know enough about this beast we live with and sometimes love1. Honestly, after 5 years and 8 months2 of living with the diagnosis, 4 years and . . . → Read More: There is always something to learn. Not so long ago, just a smidge under two months ago to be precise, Monkey surprised Eric1 and I by developing this new skill…playing with TOYS. We were so thrilled and after waiting 7 1/2 years I was expecting him to make baby steps in this arena…things like perhaps adding a few additional toys . . . → Read More: Creativity The National Fragile X Foundation released it’s new logo family today. It is a big change and I am loving it! Here is the bragging part, my husband did the animation/reveal. Please go check it out on the home page: National Fragile X Foundation
I mentioned in my last post that I had a zombie post1 lined up but two things happened2 My self-righteous anger died after I spewed the venom into mah blawg; and I forgot the password I used to password protect it3. So, no zombie posts! Which is good…it was très horrible. The problem is . . . → Read More: It is just as well. I have another grumpy-ass post eating at my brain but I am going to stick to fluff today. I need a break from me… Monkey has been working really hard at mastering sight words at school. His teacher sends home copies of the books he is able to read so we can read them . . . → Read More: This one shouldn’t hurt anyone’s head. |
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