Fragile X LINKS Group of Eastern Massachusetts

Fragile X LINKS Group of Eastern Massachusetts

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Spamalicious!

I am so easily amused…instead of just deleting the gajillion spam comments I get here I like to skim through them once in awhile. Some of them are so amusing I had to share…

Such Praise!

I thought it was going to be some boring old post, but it really compensated for my time. . . . → Read More: Spamalicious!

Almost a month?? *blush*

I’ve been reading blogs for a long time. I started with design blogs and then added mommy blogs, special needs blogs, fragile x blogs and adoption blogs…you can see the evolution of the last 7+ years of my life in my blog feed. Inevitably some bloggers begin posting erratically and then disappear. Sometimes they’ll . . . → Read More: Almost a month?? *blush*

What I really wanted to talk about.

I felt compelled to update on the IEP progress, I felt badly for leaving it hanging. We have family and friends who read here and rely on it to get all the details of our painstakingly slow progress but my heart isn’t in it right now…my heart is with a little girl (Fine she’s nearly…17? . . . → Read More: What I really wanted to talk about.

Wow, you’re good!

I asked earlier today that you keep your fingers crossed for a quicker surgery date for Duhdee…surgery is now set for a week from today. Holy cwap, folks!

Will you keep your fingers crossed for me to win the lottery next?

The Dinosaur who says “Pst!”

Heffalump.

Because it is soooooo cute. Here is my little man talking about the heffalumps.

It’s a new week but it looks awfully familiar.

What is the perfect topper to a depressed Umma? How about an incapacitated Duhdee?

Duhdee’s been having back issues since last fall, they assumed a ruptured disk that was irritating his sciatic nerve. It should have resolved within 4-6 months. He went through PT and did OK but never great. Over the last two weeks . . . → Read More: It’s a new week but it looks awfully familiar.

Moving along quickly.

Leaving that post up here makes me feel like I left my underwear1 out when guests came over. Not like if Great Grampy saw them2, more like if one of you all saw them3. Right, so, changing subjects quickly because, seriously, I have no excuse to be discussing my underwear on the internet. AND! . . . → Read More: Moving along quickly.

Unshareable thoughts shared.

I’m moody and snappy and irritated beyond all reasonable limits given the relatively happy situation ’round these parts. My thoughts are tilting noticeably to the blackhearted and ugly and I hate that. It’s not who I am.

It’s weird at times to sit here and type away, sharing so much of myself and my family . . . → Read More: Unshareable thoughts shared.

*Cough*hack*Cough*

Monkey’s fever has broken but that cough, ugh. Because of the medications he’s on he cannot take cough suppressants either. I just went into his room to set up the Vicks Waterless Vaporizer1 and his little face just lit up. I hope it lives up to his high expectations and he gets some rest . . . → Read More: *Cough*hack*Cough*