Fragile X LINKS Group of Eastern Massachusetts

Fragile X LINKS Group of Eastern Massachusetts

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Pinch me.

It’s hard to believe but, this morning, Eric and I attended an IEP meeting with Monkey’s teachers and his specialists and we left the meeting laughing. We have meetings scheduled every 4-6 weeks per his IEP and we love being able to touch base so frequently. We have daily contact with his main teacher . . . → Read More: Pinch me.

At loose ends.

I don’t know how else to describe myself these days but to say that I am at loose ends. I’m not very good at grieving, I guess. I expected the tears. I expected to keep being brought up short when my Bubba wasn’t where I expected him to be. I expected the emptiness. I . . . → Read More: At loose ends.

Sicky boy

Since Wednesday of last week, Monkey has been feeling punky1. He has a nasty, dry cough that once it starts…normally ends in puke. Hey! Have you ever seen a kid cough and puke at the same time??? Oh, man is that FUN! You need a fire hose for clean up. Ugh. Mixed in here . . . → Read More: Sicky boy

He does belong. If you don’t believe me, ask that kid.

I so desperately want to invite Monkey’s last IEP team leader to visit him at the new school. I want her to see what he is capable of. I want her to consider that perhaps they didn’t handle him1 in the best way possible. I want her to see that she still has things . . . → Read More: He does belong. If you don’t believe me, ask that kid.

Oh, oops! We have an IEP meeting today?

I never expected to be in a place where I would completely and utterly forget that we had an IEP meeting approaching.

After all the battles, I had become accustomed to days or weeks of preparation and fretting before each meeting. We would consult with our advocate, we would research, we would pour over . . . → Read More: Oh, oops! We have an IEP meeting today?

This one shouldn’t hurt anyone’s head.

I have another grumpy-ass post eating at my brain but I am going to stick to fluff today. I need a break from me…

Monkey has been working really hard at mastering sight words at school. His teacher sends home copies of the books he is able to read so we can read them . . . → Read More: This one shouldn’t hurt anyone’s head.

Our little chatterbox.

This past Saturday Duhdee, Monkey and I went to dinner with some new friends. The little girl, N, has Down’s Syndrome and is in the general education class that Monkey goes to for inclusion.

We met N’s mom over the summer, they just moved to the district and N was at the same school . . . → Read More: Our little chatterbox.

Two Gates.

Monkey’s new school has a very small playground/courtyard between it and the street. It has been fenced in for safety purposes since the kids stay outside until the first bell rings1and has two gates. Here, let me illustrate:

On day one we walked through the main gate and you know what that means, . . . → Read More: Two Gates.

This is what happens when you work to a student’s strengths…

Now that we’ve had the most amazing IEP meeting ever, the school has already started implementing the changes we discussed! We haven’t even signed the IEP yet but there’s no doubt we will…especially since we’re already seeing the benefits.

First, let me start with a story. Yesterday, Monkey and I were organizing his toys . . . → Read More: This is what happens when you work to a student’s strengths…

Just the best IEP meeting EVER.

Soooo, I mentioned that we signed the “hateful” IEP this summer just to be done with the team and get Monkey moved to the new school. If you thought I was overreacting to how awful that IEP was and how much it DOESN’T fit Monkey, let me just say…his new team HATES the same . . . → Read More: Just the best IEP meeting EVER.