Basically FX

Living with Fragile X Syndrome

How to use this strength?

Umma | August 31, 2010

After a brief flirtation with Chuggington, Monkey is, once again, obsessed with the Penguins of Madagascar.   This makes me very happy because those pen-gu-ins1 are hysterical.  Duhdee and I quote them.  A lot. Monkey also quotes them.  A lot.  Right now his favorite episode is “Hard Boiled Eggy.”  We hear a lot of “Mort!” and “My [...]

It looks like we finally did it!

Umma | August 6, 2010

Monkey’s assistive tech device, the Vantage Lite, will be shipping early next week!!  Our insurance company is paying for the device (about $7,300) and the school system is paying for the carrying case and the software (about $500).  I am in shock.  After 2 years, 2 insurance companies and countless forms…he’s got a voice. A [...]

I must apologize…

Umma | July 30, 2010

I feel as though I’ve given you all the blog equivalent of “Someone I love went to Detroit and all I got was this lousy t-shirt.”  I can do better than that.  I did actually learn stuff.  I did not spend the entire conference at the bar, I swear! One of the sessions I attended was [...]

End of the year.

Umma | June 23, 2010

Yesterday was Monkey’s end of the year celebration even though he’s not actually finished school for the year.  It marked the end of the year for the peer models, the kids on IEPs will reconvene for summer session in July. Duhdee and I managed to miss the kids’ performance.  We tried to squeeze too much [...]

I should have known better.

Umma | June 14, 2010

This morning a copy of Monkey’s ABLLS results were in his cubby at school.  I definitely agree with our advocate that it provides great visual evidence of Monkey’s skills.  I also agree with his teacher that it shows his strengths and weaknesses very effectively.  So what’s the problem?  We were just given the score sheet [...]