Contact Me

Please feel free to contact us with any questions you may have. We’re always happy to hear from others who are also living with Fragile X!

FEATURED POSTS

Our vision.
When the IEP team was discussing the vision statement for the next 5 years we had comments to insert but we largely let the rest of the team write that section because Duhdee and I are not 5 year planners. Duhdee and I are big picture visionaries.
Read More
Why I'll never be a good enough parent.
My friend Holly commented recently that she's noticed that it's the wrong parents who are questioning their parenting skills. That got me thinking... I'll never be a good enough parent and I'll sure as hell never be a great one and I don't want to b
Read More
So, it's not all sunshine, roses and unicorns flying out my butt.
I am republishing this post from February 21, 2010 for two reasons. I think it is pretty darned funny with almost a year of separation from the incident, and The company that takes the photos is still, almost a year later, trying to convince me to
Read More
A migraine saved my life.
(This is an FX Memory, from before I knew I was a carrier.) I've struggled with depression since my teens, possibly longer but it was in my teens that I first recognized it for what it was. For ten years I muddled along and then I simply could no
Read More
I'm joining the crowd.
FXSmom over at Fragile What!? had a great idea to share memories of her life with Fragile X so I've decided to join in as well. I'm going to cheat for my first post though. I wrote this in 2006 about two weeks into our journey. Reading it makes me an
Read More
Here enters the cavalry...
This is a Fragile X Memory from before our Fragile X diagnosis. At Monkey's 12 month check-up his pediatrician was a bit concerned about his lack of babbling. She asked us to set up another check-up for 15 months so that we could gauge his progres
Read More
A migraine saved my life (part 2)
(This is an FX Memory, from before I knew I was a carrier, read Part one here: A migraine saved my life.) After my intake evaluation it was a relief to finally be told that they wanted to admit me. My parents were totally shell shocked by how badly
Read More
Another distant memory...
This was written in 2006, about 3 weeks post diagnosis. *** "A journey of a thousand miles begins with a single step." - Confucius Though, sometimes, it begins with a phone call. Last week we received a call that freed us from weeks of worries bu
Read More
25 Things about life with Fragile X
My twist on that once ubiquitous "25 Things" meme on Facebook. This has been in draft form for a while. Obviously. Sometimes it takes me a while to sort things out in my head. We're nearly 4 years into our journey and I'm still figuring out how
Read More
Depression round...two?
Posts about my previous treatment for depression can be found here: Part 1 and Part 2. I am not sure this really was round two for me. I had struggled with depression for so long before I hit bottom and needed treatment in my mid-20's but it was
Read More

1 Special Family

Close preview

Loading...
A Day At A Time

Close preview

Loading...
All About Fragile X

Close preview

Loading...
Choat Family Blog

Close preview

Loading...
fragilemom

Close preview

Loading...
FXS Girl, SLP Mom

Close preview

Loading...
Help Fragile X, Help Cole

Close preview

Loading...
Holly Daze

Close preview

Loading...
It's Who I Am

Close preview

Loading...
Just a Bunch of Nothin'

Close preview

Loading...
Life with a FraX Daddy

Close preview

Loading...
Life With My X-Men

Close preview

Loading...
Love and Survival with Fragile X

Close preview

Loading...
Luckiest

Close preview

Loading...
Mrs. Rogers' Neighborhood

Close preview

Loading...
My child has Fragile X, now what?

Close preview

Loading...
My Journey Through Motherhood

Close preview

Loading...
My son's a "retard"!

Close preview

Loading...
My2Sons with Fragile X

Close preview

Loading...
NFXF Blog

Close preview

Loading...
One Personality - Just Shredded

Close preview

Loading...
Our Fragile X Journey

Close preview

Loading...
Our Fragile X Story

Close preview

Loading...
Our Life

Close preview

Loading...
Paula's Place

Close preview

Loading...
Red Letter Living

Close preview

Loading...
Sunny Day

Close preview

Loading...
The Fragile X Files

Close preview

Loading...
The Life of Riley: Special Edition

Close preview

Loading...
The Other Lion

Close preview

Loading...
The X Factor After Little Becomes Big

Close preview

Loading...
The X Mom

Close preview

Loading...
Watch Day 44

Close preview

Loading...
What's so FRAGILE about Jimmo?

Close preview

Loading...
Who's Brody?

Close preview

Loading...
Wright Writes

Close preview

Loading...

Fragile X LINKS Group of Eastern Massachusetts

Join the Webring!

Contact Me

Our vision.

Why I'll never be a good enough parent.

So, it's not all sunshine, roses and unicorns flying out my butt.

A migraine saved my life.

I'm joining the crowd.

Here enters the cavalry...

A migraine saved my life (part 2)

Another distant memory...

25 Things about life with Fragile X

Depression round...two?

Fragile X Blogs

Categories

Archives

Meta