Comments on: Here enters the cavalry… http://www.basicallyfx.com/fragile-x-memories/here-enters-the-cavalry/ Living with Fragile X Syndrome Tue, 07 Feb 2012 20:29:58 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: Fragilemom http://www.basicallyfx.com/fragile-x-memories/here-enters-the-cavalry/comment-page-1/#comment-402 Fragilemom Fri, 27 Jun 2008 03:50:10 +0000 http://www.basicallyfx.com/?p=194#comment-402 I'm happy that your pediatrician at least noticed that he wasn't doing the things he 'should have' been doing. When we'd go to our "well baby checkups" they would ask if Ian is doing this or that. I would say "no", "no", "no". Being a new mom, I figured if something was wrong, they would tell me. NOPE. We eventually left that pediatrician after a couple more negligent episodes on his part. We also no longer did the 'well baby checkups' with any of our kids. If they weren't sick, all was fine. Our current pediatrician worked quickly with Ian's situation and was the one who suggested we get him tested for FX. As far as the EI, we've had the same PT see all of our children. I wasn't impressed with our first ST, but adore the one we have now. Ian had a lot more therapists than the other kids. We kinda figured out along the way which were helpful and which stressed my days out. I totally relate to what you said about "Do they think I'm stupid?" and feeling like a failure. I still struggle with feeling like a failure! But I am nicer to doctors and such, realizing that unfortunately most of the ones we work with don't have a clue about FX. That's our next goal is to find the ones who can teach us more! Wow! I should have just blogged an entry of all this! Sorry so long. I’m happy that your pediatrician at least noticed that he wasn’t doing the things he ‘should have’ been doing. When we’d go to our “well baby checkups” they would ask if Ian is doing this or that. I would say “no”, “no”, “no”. Being a new mom, I figured if something was wrong, they would tell me. NOPE. We eventually left that pediatrician after a couple more negligent episodes on his part. We also no longer did the ‘well baby checkups’ with any of our kids. If they weren’t sick, all was fine. Our current pediatrician worked quickly with Ian’s situation and was the one who suggested we get him tested for FX.

As far as the EI, we’ve had the same PT see all of our children. I wasn’t impressed with our first ST, but adore the one we have now. Ian had a lot more therapists than the other kids. We kinda figured out along the way which were helpful and which stressed my days out. I totally relate to what you said about “Do they think I’m stupid?” and feeling like a failure. I still struggle with feeling like a failure! But I am nicer to doctors and such, realizing that unfortunately most of the ones we work with don’t have a clue about FX. That’s our next goal is to find the ones who can teach us more!

Wow! I should have just blogged an entry of all this! Sorry so long.

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