Comments on: Clinical Tests Begin on Medication to Correct Fragile X Defect http://www.basicallyfx.com/fragile-x-news/clinical-tests-begin-on-medication-to-correct-fragile-x-defect/ Living with Fragile X Syndrome Tue, 07 Feb 2012 20:29:58 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: Umma http://www.basicallyfx.com/fragile-x-news/clinical-tests-begin-on-medication-to-correct-fragile-x-defect/comment-page-1/#comment-11321 Umma Thu, 10 Dec 2009 18:45:50 +0000 http://www.basicallyfx.com/?p=1797#comment-11321 We have not started minocycline. The specialist we see is not in favor of prescribing it at this time. He wants more data. There are pros and cons and with the Dr. we trust telling us to hold off...it's making a hard choice harder. We have started the Acetyl L Carnitine. I think it's too soon to tell. My understanding is that it could take months to see anything, if we are going to. We're in the wait and see mode. We have not started minocycline. The specialist we see is not in favor of prescribing it at this time. He wants more data. There are pros and cons and with the Dr. we trust telling us to hold off…it’s making a hard choice harder.

We have started the Acetyl L Carnitine. I think it’s too soon to tell. My understanding is that it could take months to see anything, if we are going to. We’re in the wait and see mode.

]]> By: AutismDad http://www.basicallyfx.com/fragile-x-news/clinical-tests-begin-on-medication-to-correct-fragile-x-defect/comment-page-1/#comment-11230 AutismDad Tue, 24 Nov 2009 23:45:11 +0000 http://www.basicallyfx.com/?p=1797#comment-11230 Did you guys every start the minocycline? We're about to for our 4.5 y/o boy who sounds A LOT like monkey. (We just received the FX diagnosis YESTERDAY-- we've been working "normal" autism thus far!) How about the Acetyl L Carnotine? Tried it? Any luck?! Did you guys every start the minocycline? We’re about to for our 4.5 y/o boy who sounds A LOT like monkey. (We just received the FX diagnosis YESTERDAY– we’ve been working “normal” autism thus far!)

How about the Acetyl L Carnotine? Tried it? Any luck?!

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