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	<title>Comments on: So, it&#8217;s not all sunshine, roses and unicorns flying out my butt.</title>
	<atom:link href="http://www.basicallyfx.com/life-with-fragile-x/so-its-not-all-sunshine-roses-and-unicorns-flying-out-my-butt/feed/" rel="self" type="application/rss+xml" />
	<link>http://www.basicallyfx.com/life-with-fragile-x/so-its-not-all-sunshine-roses-and-unicorns-flying-out-my-butt/</link>
	<description>Living with Fragile X Syndrome</description>
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		<title>By: Umma</title>
		<link>http://www.basicallyfx.com/life-with-fragile-x/so-its-not-all-sunshine-roses-and-unicorns-flying-out-my-butt/comment-page-1/#comment-23978</link>
		<dc:creator>Umma</dc:creator>
		<pubDate>Wed, 05 Jan 2011 02:08:52 +0000</pubDate>
		<guid isPermaLink="false">http://www.basicallyfx.com/?p=2216#comment-23978</guid>
		<description>I like solo rude, lol. I think we might try to do a sensory friendly movie but they only happen once a month and we need to wait for one that he&#039;d like.</description>
		<content:encoded><![CDATA[<p>I like solo rude, lol. I think we might try to do a sensory friendly movie but they only happen once a month and we need to wait for one that he&#8217;d like.</p>
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		<title>By: Trish Ostrout</title>
		<link>http://www.basicallyfx.com/life-with-fragile-x/so-its-not-all-sunshine-roses-and-unicorns-flying-out-my-butt/comment-page-1/#comment-23972</link>
		<dc:creator>Trish Ostrout</dc:creator>
		<pubDate>Wed, 05 Jan 2011 01:38:53 +0000</pubDate>
		<guid isPermaLink="false">http://www.basicallyfx.com/?p=2216#comment-23972</guid>
		<description>Darn spell checker grrr</description>
		<content:encoded><![CDATA[<p>Darn spell checker grrr</p>
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		<title>By: Trish Ostrout</title>
		<link>http://www.basicallyfx.com/life-with-fragile-x/so-its-not-all-sunshine-roses-and-unicorns-flying-out-my-butt/comment-page-1/#comment-23971</link>
		<dc:creator>Trish Ostrout</dc:creator>
		<pubDate>Wed, 05 Jan 2011 01:37:46 +0000</pubDate>
		<guid isPermaLink="false">http://www.basicallyfx.com/?p=2216#comment-23971</guid>
		<description>Popcorn.lots of popcorn...and ear plugs for everyone else :) the best movie was wall-e Jake was laughing so loud and rocking his wheelchair so hard I thought he&#039;d flip it over! Some so woman had the nerve to shush him. It was a matinee and her kids had been running up and down the aisles. I made sure to say &quot;some people are solo rude...and will let their kids just run rampant!&quot; really loud :) then when Jake started bouncing and cracking up I joined him ;)</description>
		<content:encoded><![CDATA[<p>Popcorn.lots of popcorn&#8230;and ear plugs for everyone else <img src='http://www.basicallyfx.com/wp-includes/images/smilies/icon_smile.gif' alt=':)' class='wp-smiley' />  the best movie was wall-e Jake was laughing so loud and rocking his wheelchair so hard I thought he&#8217;d flip it over! Some so woman had the nerve to shush him. It was a matinee and her kids had been running up and down the aisles. I made sure to say &#8220;some people are solo rude&#8230;and will let their kids just run rampant!&#8221; really loud <img src='http://www.basicallyfx.com/wp-includes/images/smilies/icon_smile.gif' alt=':)' class='wp-smiley' />  then when Jake started bouncing and cracking up I joined him <img src='http://www.basicallyfx.com/wp-includes/images/smilies/icon_wink.gif' alt=';)' class='wp-smiley' /> </p>
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		<title>By: Umma</title>
		<link>http://www.basicallyfx.com/life-with-fragile-x/so-its-not-all-sunshine-roses-and-unicorns-flying-out-my-butt/comment-page-1/#comment-23970</link>
		<dc:creator>Umma</dc:creator>
		<pubDate>Wed, 05 Jan 2011 00:52:55 +0000</pubDate>
		<guid isPermaLink="false">http://www.basicallyfx.com/?p=2216#comment-23970</guid>
		<description>It is the Aquarium in Boston. We&#039;ve never tried a movie of any sort! Screaming will likely be our first experience, lol.</description>
		<content:encoded><![CDATA[<p>It is the Aquarium in Boston. We&#8217;ve never tried a movie of any sort! Screaming will likely be our first experience, lol.</p>
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		<title>By: Trish Ostrout</title>
		<link>http://www.basicallyfx.com/life-with-fragile-x/so-its-not-all-sunshine-roses-and-unicorns-flying-out-my-butt/comment-page-1/#comment-23966</link>
		<dc:creator>Trish Ostrout</dc:creator>
		<pubDate>Wed, 05 Jan 2011 00:43:39 +0000</pubDate>
		<guid isPermaLink="false">http://www.basicallyfx.com/?p=2216#comment-23966</guid>
		<description>If this is the Boston aquarium I can say ditto with the addition of screaming through the IMAX movie we paid extra for. Happy outside watching seals, I should have stayed outside. Positive said that crazy ramp is fin to go the wrong way down really fast with a stroller or wheelchair! Whoohoo normal kids eat your heart out. Also spinning toys in the gift shop first, oh yeah definitely first!</description>
		<content:encoded><![CDATA[<p>If this is the Boston aquarium I can say ditto with the addition of screaming through the IMAX movie we paid extra for. Happy outside watching seals, I should have stayed outside. Positive said that crazy ramp is fin to go the wrong way down really fast with a stroller or wheelchair! Whoohoo normal kids eat your heart out. Also spinning toys in the gift shop first, oh yeah definitely first!</p>
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		<title>By: Bonnie Stroupe</title>
		<link>http://www.basicallyfx.com/life-with-fragile-x/so-its-not-all-sunshine-roses-and-unicorns-flying-out-my-butt/comment-page-1/#comment-23959</link>
		<dc:creator>Bonnie Stroupe</dc:creator>
		<pubDate>Tue, 04 Jan 2011 23:44:58 +0000</pubDate>
		<guid isPermaLink="false">http://www.basicallyfx.com/?p=2216#comment-23959</guid>
		<description>Thanks for sharing, its good to know we parents aren&#039;t alone in our struggles.</description>
		<content:encoded><![CDATA[<p>Thanks for sharing, its good to know we parents aren&#8217;t alone in our struggles.</p>
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		<title>By: Dorinda</title>
		<link>http://www.basicallyfx.com/life-with-fragile-x/so-its-not-all-sunshine-roses-and-unicorns-flying-out-my-butt/comment-page-1/#comment-18656</link>
		<dc:creator>Dorinda</dc:creator>
		<pubDate>Tue, 19 Oct 2010 10:56:22 +0000</pubDate>
		<guid isPermaLink="false">http://www.basicallyfx.com/?p=2216#comment-18656</guid>
		<description>Oh man, note to self ................... read what you&#039;ve written and correct typo&#039;s before hitting the submit button! You can guess what the mistakes were supposed to say :)</description>
		<content:encoded><![CDATA[<p>Oh man, note to self &#8230;&#8230;&#8230;&#8230;&#8230;&#8230;. read what you&#8217;ve written and correct typo&#8217;s before hitting the submit button! You can guess what the mistakes were supposed to say <img src='http://www.basicallyfx.com/wp-includes/images/smilies/icon_smile.gif' alt=':)' class='wp-smiley' /> </p>
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		<title>By: Dorinda</title>
		<link>http://www.basicallyfx.com/life-with-fragile-x/so-its-not-all-sunshine-roses-and-unicorns-flying-out-my-butt/comment-page-1/#comment-18655</link>
		<dc:creator>Dorinda</dc:creator>
		<pubDate>Tue, 19 Oct 2010 10:52:07 +0000</pubDate>
		<guid isPermaLink="false">http://www.basicallyfx.com/?p=2216#comment-18655</guid>
		<description>“Grampy?  Home? DOGS!” channel.  I wish it came with a mute button.

OMG, this so rings bells! 
Sorry to laugh but that was great, I look back and laugh at days like that (it&#039;s every time we walk out the door to go anywhere but sometimes it&#039;s way worse than others and you have to see the funny side), they aren&#039;t too funny at the time though.

My youngest bozo uses the &#039;HOME&#039; channel all the time, we go away for the month in August as the thought of being stuck in the UK with lousy weather, unable to take them out because there are&quot;PEOPLE&quot; scares the heck outta me, instead we spend it in a villa in the sunshine in Spain so they can splash and swim in the sun for the school holidays, and we get to relax (sort of). But, from the moment we leave until the moment we get back (and sometimes even once we&#039;re back) little bozo wants &#039;HOME&#039;, if you listened to him you&#039;d think he hated our annual Spain trip but he remembers every detail and tells anyone who&#039;ll listen (obviously only people he knows and not &#039;PEOPLE&#039;) all about how &quot;bwillaint&quot; it all was!

My worst day ever was sitting in a shoe shop on the floor trying to wrap my arms and legs around both my boys at once to stop them from hitting/kicking/headbutting me and throwing shoes at the circle of women who had surrounded me and were making judgmental comments about how my children should be slapped. The whole situation could have been avoided if the assistant I&#039;d spoken to, explaining that I would wait outside until it was my turn to get them measured and why? Moment later I was called into the shop, asked to take a seat and left for 10 minutes, in this time the boys became more and more upset at being in an envirnoment they couldn&#039;t cope with.  I ended up sobbing on the floor with a bloody noes and numerous bumps(whcih later turned to bruises) all because an assistant didn&#039;t listen. When they&#039;d eventually worn themselves out I managed to get them back into their major buggy and leave without having had feet measured or having got shoes!
From that day on I&#039;ve drawn around their feet onto a piece of card and taken it to the shoe shops on my own whilst they are at school and fitted their shoes that way.
I was a total wreck for days after that incident, more so because I&#039;d let them (the pointing women) win, I&#039;d alway managed, up until then to keep control until I got to the car, where I could then let the tears come behind the tinted windows. On that day I felt totally broken. It&#039;s funny now when I think what it must have looked like from the outside but it wasn&#039;t at the time ;)
These days I know their limits and don&#039;t let myself get into such situations ................. funny how they always manage to raise the bar when you think you&#039;ve cracked it!!</description>
		<content:encoded><![CDATA[<p>“Grampy?  Home? DOGS!” channel.  I wish it came with a mute button.</p>
<p>OMG, this so rings bells!<br />
Sorry to laugh but that was great, I look back and laugh at days like that (it&#8217;s every time we walk out the door to go anywhere but sometimes it&#8217;s way worse than others and you have to see the funny side), they aren&#8217;t too funny at the time though.</p>
<p>My youngest bozo uses the &#8216;HOME&#8217; channel all the time, we go away for the month in August as the thought of being stuck in the UK with lousy weather, unable to take them out because there are&#8221;PEOPLE&#8221; scares the heck outta me, instead we spend it in a villa in the sunshine in Spain so they can splash and swim in the sun for the school holidays, and we get to relax (sort of). But, from the moment we leave until the moment we get back (and sometimes even once we&#8217;re back) little bozo wants &#8216;HOME&#8217;, if you listened to him you&#8217;d think he hated our annual Spain trip but he remembers every detail and tells anyone who&#8217;ll listen (obviously only people he knows and not &#8216;PEOPLE&#8217;) all about how &#8220;bwillaint&#8221; it all was!</p>
<p>My worst day ever was sitting in a shoe shop on the floor trying to wrap my arms and legs around both my boys at once to stop them from hitting/kicking/headbutting me and throwing shoes at the circle of women who had surrounded me and were making judgmental comments about how my children should be slapped. The whole situation could have been avoided if the assistant I&#8217;d spoken to, explaining that I would wait outside until it was my turn to get them measured and why? Moment later I was called into the shop, asked to take a seat and left for 10 minutes, in this time the boys became more and more upset at being in an envirnoment they couldn&#8217;t cope with.  I ended up sobbing on the floor with a bloody noes and numerous bumps(whcih later turned to bruises) all because an assistant didn&#8217;t listen. When they&#8217;d eventually worn themselves out I managed to get them back into their major buggy and leave without having had feet measured or having got shoes!<br />
From that day on I&#8217;ve drawn around their feet onto a piece of card and taken it to the shoe shops on my own whilst they are at school and fitted their shoes that way.<br />
I was a total wreck for days after that incident, more so because I&#8217;d let them (the pointing women) win, I&#8217;d alway managed, up until then to keep control until I got to the car, where I could then let the tears come behind the tinted windows. On that day I felt totally broken. It&#8217;s funny now when I think what it must have looked like from the outside but it wasn&#8217;t at the time <img src='http://www.basicallyfx.com/wp-includes/images/smilies/icon_wink.gif' alt=';)' class='wp-smiley' /><br />
These days I know their limits and don&#8217;t let myself get into such situations &#8230;&#8230;&#8230;&#8230;&#8230;.. funny how they always manage to raise the bar when you think you&#8217;ve cracked it!!</p>
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		<title>By: grammy</title>
		<link>http://www.basicallyfx.com/life-with-fragile-x/so-its-not-all-sunshine-roses-and-unicorns-flying-out-my-butt/comment-page-1/#comment-12457</link>
		<dc:creator>grammy</dc:creator>
		<pubDate>Wed, 24 Feb 2010 20:29:44 +0000</pubDate>
		<guid isPermaLink="false">http://www.basicallyfx.com/?p=2216#comment-12457</guid>
		<description>Plus the fact I am sure that your spelling is much more accurate than his for playing scrabble.  I am so sorry my son!</description>
		<content:encoded><![CDATA[<p>Plus the fact I am sure that your spelling is much more accurate than his for playing scrabble.  I am so sorry my son!</p>
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		<title>By: Umma</title>
		<link>http://www.basicallyfx.com/life-with-fragile-x/so-its-not-all-sunshine-roses-and-unicorns-flying-out-my-butt/comment-page-1/#comment-12451</link>
		<dc:creator>Umma</dc:creator>
		<pubDate>Wed, 24 Feb 2010 02:12:57 +0000</pubDate>
		<guid isPermaLink="false">http://www.basicallyfx.com/?p=2216#comment-12451</guid>
		<description>I don&#039;t mind if folks get a good laugh...by 4 AM on Sunday I was seeing the humor.  My poor MIL was shocked by my language (sorry!) and amused that I only &quot;bleeped&quot; one of them...probably the least bad of them, even.  

The limp noodle is the single most annoying thing Monkey does.  It makes me INSANE.  Of course, mostly because he does it in places where it cannot be safely ignored.  The whining I can ignore...I just go to my happy place.

I have to thank my HS friend Jennifer for inspiring the post, she read a bit here and decided I was patient...HA!  I realized I needed to clear up that misconception ;-)  I know every parent goes through this stuff...we just never seem to see the end of it!  So, my sisters (and Len), rest assured you are not alone the next time this happens to you!

Holly&#039;s Mom...I hope you all manage to shake the sickness...this has been a very bad year for everyone I think.  Monkey, Duhdee and I have been sharing various forms of the ICK since December!!

Fragilemom...Duhdee won&#039;t play Scrabble with me but I know for a fact he wouldn&#039;t trust me for a second!  Of course, I make up words all the time so Duhdee sometimes doesn&#039;t believe that a word I used was actually a real word and he does some fact checking.  I love messing with him ;-)</description>
		<content:encoded><![CDATA[<p>I don&#8217;t mind if folks get a good laugh&#8230;by 4 AM on Sunday I was seeing the humor.  My poor MIL was shocked by my language (sorry!) and amused that I only &#8220;bleeped&#8221; one of them&#8230;probably the least bad of them, even.  </p>
<p>The limp noodle is the single most annoying thing Monkey does.  It makes me INSANE.  Of course, mostly because he does it in places where it cannot be safely ignored.  The whining I can ignore&#8230;I just go to my happy place.</p>
<p>I have to thank my HS friend Jennifer for inspiring the post, she read a bit here and decided I was patient&#8230;HA!  I realized I needed to clear up that misconception <img src='http://www.basicallyfx.com/wp-includes/images/smilies/icon_wink.gif' alt=';-)' class='wp-smiley' />   I know every parent goes through this stuff&#8230;we just never seem to see the end of it!  So, my sisters (and Len), rest assured you are not alone the next time this happens to you!</p>
<p>Holly&#8217;s Mom&#8230;I hope you all manage to shake the sickness&#8230;this has been a very bad year for everyone I think.  Monkey, Duhdee and I have been sharing various forms of the ICK since December!!</p>
<p>Fragilemom&#8230;Duhdee won&#8217;t play Scrabble with me but I know for a fact he wouldn&#8217;t trust me for a second!  Of course, I make up words all the time so Duhdee sometimes doesn&#8217;t believe that a word I used was actually a real word and he does some fact checking.  I love messing with him <img src='http://www.basicallyfx.com/wp-includes/images/smilies/icon_wink.gif' alt=';-)' class='wp-smiley' /> </p>
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