9 thoughts on “Ten days, gone.

  • May 18, 2011 at 10:11 am
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    yes our little Monkey is quite amazing at 7 and just look how far he has come. He brings the world together for us and makes us proud each and every moment.

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  • May 18, 2011 at 11:05 am
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    Love the paragraph about celebrating every day! I love reading your blog Melissa, you capture our FX so well. Thank you!

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  • May 18, 2011 at 11:12 am
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    Thanks Laurie! It’s the very best therapy I’ve ever tried 🙂

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  • May 18, 2011 at 11:44 am
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    I enjoyed reading your blog and I can so relate to it! My FX boys are 21 & 26 and I wish I could go back and re-live all the great moments with them. I have that same little part of my mind that you described, but over all, they are awesome sons and make me laugh and proud all the time. Enjoy every moment, they grow up so fast!

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  • May 18, 2011 at 11:45 am
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    Thanks Charlotte! I looooove hearing this from moms with older boys. It is so nice to know that the good times keep coming!

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  • May 18, 2011 at 1:28 pm
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    you put this all down on “paper” so well. we’re so grateful to have you guys in our corner 🙂 and take it from me – 7 year old boys are really fun and crazy!

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  • May 24, 2011 at 1:58 pm
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    I’m having a laugh-cry from reading this.

    We’re in the process of exploring our medication options for H, and one of them being minocycline (sp?)…

    I’m reluctant over the known (and unknown) adverse effects. And just recently I was having a conversation with our pharmacist, and I said do you think that it might help that H does not yet have all of his adult teeth? So if his baby teeth become discolored, and then fall out, will the adult ones grown in OK? And he said well, it’s actually systemic and not topical. So if anything, the permanently hardened enamel may reduce the side effect on the teeth. And I said when does that happen? And he said age 8.

    So here I was wishing, just for a moment, that I could fast-forward 2+ years to age 8 and have fewer reservations about starting him on this medication.

    I now find comfort in knowing that the older they get, the more years of clinical trial research we can compare to. So at the very least, maybe next year when Caleb turns eight, celebrate the fact that we’re another year closer to FDA-approval of a treatment. And maybe even a cure. Doesn’t have to be that year, because either way we’ll be a year closer.

    But most importantly, just remember that even what our kids have now, is in a sense, like a cure. I mean the services, the knowledge, the therapies, the doctors, the experts in the field… not to mention the awareness. I mean, compared to what they would have had when WE were their age.

    The world has come a long, long way… and that’s a really good thing.
    Cara´s last blog post ..Tabble

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