Comments on: The long awaited, much anticipated, appointment. http://www.basicallyfx.com/life-with-fragile-x/the-long-awaited-much-anticipated-appointment/ Living with Fragile X Syndrome Tue, 07 Feb 2012 20:29:58 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: Umma http://www.basicallyfx.com/life-with-fragile-x/the-long-awaited-much-anticipated-appointment/comment-page-1/#comment-11919 Umma Thu, 21 Jan 2010 21:23:48 +0000 http://www.basicallyfx.com/?p=2130#comment-11919 Thanks ladies. We will survive, we've made it this long! Aimee, we had great luck with the melatonin at one point. Back in the day he would stay awake in his crib for HOURS every night...unable to sleep. The hope is that this increased dose will help him stay asleep. The Dr. gives it a 50/50 shot of working. Since his big issue at school right now is his ability (or lack thereof) to stay focused on a task...finding a way to get him to sleep can only help. The sleep charts showed that he's losing about 4 hours of sleep a NIGHT when school is in session. Thanks ladies. We will survive, we’ve made it this long!

Aimee, we had great luck with the melatonin at one point. Back in the day he would stay awake in his crib for HOURS every night…unable to sleep. The hope is that this increased dose will help him stay asleep. The Dr. gives it a 50/50 shot of working.

Since his big issue at school right now is his ability (or lack thereof) to stay focused on a task…finding a way to get him to sleep can only help. The sleep charts showed that he’s losing about 4 hours of sleep a NIGHT when school is in session.

]]> By: 1 Special Family http://www.basicallyfx.com/life-with-fragile-x/the-long-awaited-much-anticipated-appointment/comment-page-1/#comment-11918 1 Special Family Thu, 21 Jan 2010 19:56:17 +0000 http://www.basicallyfx.com/?p=2130#comment-11918 Good Luck! We've all been there, and you'll get through it! Good Luck! We’ve all been there, and you’ll get through it!

]]> By: Aimee http://www.basicallyfx.com/life-with-fragile-x/the-long-awaited-much-anticipated-appointment/comment-page-1/#comment-11917 Aimee Thu, 21 Jan 2010 19:49:17 +0000 http://www.basicallyfx.com/?p=2130#comment-11917 Good Luck with the sleep issues. Nathan had them for a while, but since he stayed in his room mostly quiet, we didn't really think of it as a problem. We're giving him 1.5 mg of Melatonin and it knocks him out and has had him sleeping through the night for about a month now. It's amazing how every child processes things so differently. I will say, though, that with the melatonin and sleep- Nathan's behavior has changed tremendously. He was yelling all the time, I had to stop taking him places with me because he'd just let out this super loud yell. It wasn't when he was mad, he mostly just liked it. Well, he has stopped for now. I'll take it! I imagine you will all be much happier when Monkey sleeps through the night. Have a restful weekend! Aimee Good Luck with the sleep issues. Nathan had them for a while, but since he stayed in his room mostly quiet, we didn’t really think of it as a problem. We’re giving him 1.5 mg of Melatonin and it knocks him out and has had him sleeping through the night for about a month now. It’s amazing how every child processes things so differently. I will say, though, that with the melatonin and sleep- Nathan’s behavior has changed tremendously. He was yelling all the time, I had to stop taking him places with me because he’d just let out this super loud yell. It wasn’t when he was mad, he mostly just liked it. Well, he has stopped for now. I’ll take it! I imagine you will all be much happier when Monkey sleeps through the night. Have a restful weekend!
Aimee

]]>