| Basically FX | Living with Fragile X Syndrome

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By Melissa, on December 31st, 2008

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A migraine saved my life (part 2)
(This is an FX Memory, from before I knew I was a carrier, read Part one here: A migraine saved my life.) After my intake evaluation it was a relief to finally be told that they wanted to admit me. My parents were totally shell shocked by how badly
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So, it's not all sunshine, roses and unicorns flying out my butt.
I am republishing this post from February 21, 2010 for two reasons. I think it is pretty darned funny with almost a year of separation from the incident, and The company that takes the photos is still, almost a year later, trying to convince me to
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Here enters the cavalry...
This is a Fragile X Memory from before our Fragile X diagnosis. At Monkey's 12 month check-up his pediatrician was a bit concerned about his lack of babbling. She asked us to set up another check-up for 15 months so that we could gauge his progres
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Why I'll never be a good enough parent.
My friend Holly commented recently that she's noticed that it's the wrong parents who are questioning their parenting skills. That got me thinking... I'll never be a good enough parent and I'll sure as hell never be a great one and I don't want to b
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A migraine saved my life.
(This is an FX Memory, from before I knew I was a carrier.) I've struggled with depression since my teens, possibly longer but it was in my teens that I first recognized it for what it was. For ten years I muddled along and then I simply could no
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Another distant memory...
This was written in 2006, about 3 weeks post diagnosis. *** "A journey of a thousand miles begins with a single step." - Confucius Though, sometimes, it begins with a phone call. Last week we received a call that freed us from weeks of worries bu
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Our vision.
When the IEP team was discussing the vision statement for the next 5 years we had comments to insert but we largely let the rest of the team write that section because Duhdee and I are not 5 year planners. Duhdee and I are big picture visionaries.
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I'm joining the crowd.
FXSmom over at Fragile What!? had a great idea to share memories of her life with Fragile X so I've decided to join in as well. I'm going to cheat for my first post though. I wrote this in 2006 about two weeks into our journey. Reading it makes me an
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Depression round...two?
Posts about my previous treatment for depression can be found here: Part 1 and Part 2. I am not sure this really was round two for me. I had struggled with depression for so long before I hit bottom and needed treatment in my mid-20's but it was
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25 Things about life with Fragile X
My twist on that once ubiquitous "25 Things" meme on Facebook. This has been in draft form for a while. Obviously. Sometimes it takes me a while to sort things out in my head. We're nearly 4 years into our journey and I'm still figuring out how
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1 Special Family

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A Day At A Time

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All About Fragile X

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Choat Family Blog

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fragilemom

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FXS Girl, SLP Mom

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Help Fragile X, Help Cole

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Holly Daze

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It's Who I Am

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Just a Bunch of Nothin'

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Life with a FraX Daddy

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Life With My X-Men

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Love and Survival with Fragile X

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Luckiest

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Mrs. Rogers' Neighborhood

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My child has Fragile X, now what?

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My Journey Through Motherhood

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My son's a "retard"!

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My2Sons with Fragile X

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NFXF Blog

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One Personality - Just Shredded

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Our Fragile X Journey

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Our Fragile X Story

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Our Life

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Paula's Place

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Red Letter Living

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Sunny Day

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The Fragile X Files

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The Life of Riley: Special Edition

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The Other Lion

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The X Factor After Little Becomes Big

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The X Mom

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Watch Day 44

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What's so FRAGILE about Jimmo?

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Who's Brody?

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Wright Writes

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A migraine saved my life (part 2)

So, it's not all sunshine, roses and unicorns flying out my butt.

Here enters the cavalry...

Why I'll never be a good enough parent.

A migraine saved my life.

Another distant memory...

Our vision.

I'm joining the crowd.

Depression round...two?

25 Things about life with Fragile X

Fragile X Blogs

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