Paula's Place - Fragile X, Fascianos and More
My own personal journal about my family and how Fragile X affects it.
Raising two boys with Fragile X Syndrome
This is just a site where I can keep track of what is going on in my family's life and it helps me remember to get the camera out more often and to write things down. It is also nice to just get on there and say what I'm thinking or feeling sometimes with all that I have going on in my life. I talk about our life with Fragile X sometimes and sometimes it doesn't come up. This is just a blog about our family and our life.
Our family website dedicated to living with Fragile X Syndrome.
This & That & Fragile X
This blog is usually about being the parent of a young, extremely active, boy with Fragile X Syndrome. Other times it's about being a single mom who also happens to have Fragile X. And other times it's just about life in general.
Holly was born on 3/11/08 with Fragile X. I started keeping a daily journal when she began an experimental drug treatment through the UC Davis Mind Institute with Dr. Randi Hagerman. Holly recieved early intervention services. Thankfully she has only show very mild delays. I so enjoyed keeping her treatment journal, I decided to create a blog to chronicle our journey.
Mostly big and some little stuff related to Fragile X: grief, joy, work, marriage, community
Our blog. :)
A blog devoted to finding the answer to my daughter's disability. Fragile-X? Autism? Or just something we never heard of?
My blog about living life with FXS.
Brody and his service dog, Millo. Come join us in a day to day adventure with adopted "triplets"
This is blog about the everyday happenings with our son, Cale, who was just diagnosed with Fragile X Syndrome.
This site is to remind us that we were chosen to be the parents and family of a child with special needs, it didn't just happen. Because of that, we know we can handle whatever is thrown at us. We just need to remember to laugh along the way!
The true story of identical twins with Fragile X Syndrome, their unaffected big sister, and their loving and devoted mom & dad.
About "Our Life" mixed with our three children who all have Fragile X Syndrome. The funny, sweet and not so funny moments.
Musings of a mom with 2 fx kids, and one without fx, life with a diabetic kid, and a quilting hobby...just whatever else pops in my head.
Life as "Me" in all my many roles...mother, teacher, police officer, equine therapist, adventure seeker... Come along and join the ride.
Our journey through parenthood with a curve ball thrown at us: Fragile X Syndrome.
I hope that by documenting our experience with FXS that maybe we'll be able to help others along their journey as well.
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