eXtraordinary - thoughts about life with fragile X.
We are the Strattons. Our oldest was adopted from Russia. Our middle son came to us as our foster child. It took two years and a big custody trial before his adoption was finalized. No plans to have biological children as I am a Fragile X carrier but then... surprise! Along came our youngest son who was diagnosed with Fragile X at two months old. The husband is a missionary pilot and I'm in charge of all things groundspeed. Here's our family journal of just what's going on down here on the ground!
Spreading awareness by providing information, articles and links to where to find out more.
This is a blog written by "Gidget" and it's about her life with Cody, her son with Fragile X. She has a direct and sometimes blunt way of writing about her life, the emotions, and her son. I think that's worth a read.
About my son's life journey with Fragile X and PDD-NOS, family and friends, love and laughter, and all that in-between stuff...
My blog gives a view of life as the father of kids with and without Fragile X.
In early 2011 my son Connor, was diagnosed as Autistic and Mosaic Fragile X, he was not quite 2. It was both shocking news and an explanation of the incredibly hard few years that had led to that point. But I knew, that was just the beginning for us, we still have Connor's whole life ahead of us.
Situational stories, often dealing with Fragile X
Describing our Fragile X journey.
Fragile X - An Australian Perspective. This blog will highlight and talk about different trends and policies being highlighted around the world and how that may affect families in Australia living with Fragile X. It will also be a mechanism to advertise and describe any Fragile X events and seminars that may be scheduled in different areas around Australia It also will feature life in the Peate family and how Fragile X affects us on a daily basis.
A mother's journey through diagnosis, grief, acceptance and working towards happiness.
We are a family of 8, Mumma ,Papa and our 6 children. We have 5 children with Fragile X syndrome and 4 also have Autism
A blog about our life, feelings on Liam's diagnoses and fun crafts....
A fraggle mommy blog with absolutely no purpose at all :)
My blog about my journey with fragile x.
A place to share my thoughts on the beautiful chaos that is our life with a special needs child. Though God has called us to a very unique path, we are learning so much about life, love, and the mysterious journey of faith.
Paula's Place - Fragile X, Fascianos and More
My own personal journal about my family and how Fragile X affects it.
Raising two boys with Fragile X Syndrome
This is just a site where I can keep track of what is going on in my family's life and it helps me remember to get the camera out more often and to write things down. It is also nice to just get on there and say what I'm thinking or feeling sometimes with all that I have going on in my life. I talk about our life with Fragile X sometimes and sometimes it doesn't come up. This is just a blog about our family and our life.
Our family website dedicated to living with Fragile X Syndrome.
This & That & Fragile X
|<< Previous||1 2||Next >>|