Fragile X Webring

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Fragile X Webring

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Holly Daze

Holly was born on 3/11/08 with Fragile X. I started keeping a daily journal when she began an experimental drug treatment through the UC Davis Mind Institute with Dr. Randi Hagerman. Holly recieved early intervention services. Thankfully she has only show very mild delays. I so enjoyed keeping her treatment journal, I decided to create a blog to chronicle our journey.

Owned by vczdavis
Our Fragile X Journey

Owned by Mike Makris
Love and Survival with Fragile X

Mostly big and some little stuff related to Fragile X: grief, joy, work, marriage, community

Owned by SarahandZac
Adventures In Holland

Our blog. :)

Owned by Leanne
Chasing The Answer

A blog devoted to finding the answer to my daughter's disability. Fragile-X? Autism? Or just something we never heard of?

Owned by Ambismom
Fragile X-Traordinary

My blog about living life with FXS.

Owned by jddsmith
Who's Brody?

Brody and his service dog, Millo. Come join us in a day to day adventure with adopted "triplets"

Owned by brody's mom
Building on the Good

Owned by bethandrandy
What's so FRAGILE about Jimmo?

Owned by buffygrande
Choat Family Blog

This is blog about the everyday happenings with our son, Cale, who was just diagnosed with Fragile X Syndrome.

Owned by christychoat
1 Special Family

This site is to remind us that we were chosen to be the parents and family of a child with special needs, it didn't just happen. Because of that, we know we can handle whatever is thrown at us. We just need to remember to laugh along the way!

Owned by 1specialfamily
The Fragile X Files

The true story of identical twins with Fragile X Syndrome, their unaffected big sister, and their loving and devoted mom & dad.

Owned by bkkorman
Our Life

About "Our Life" mixed with our three children who all have Fragile X Syndrome. The funny, sweet and not so funny moments.

Owned by Rachael
Watch Day 44

Musings of a mom with 2 fx kids, and one without fx, life with a diabetic kid, and a quilting hobby...just whatever else pops in my head.

Owned by holly lynn
One Personality; Just Shredded

Life as "Me" in all my many roles...mother, teacher, police officer, equine therapist, adventure seeker... Come along and join the ride.

Owned by jkalb
My Journey Through Motherhood

Our journey through parenthood with a curve ball thrown at us: Fragile X Syndrome.

Owned by Logans_momma
A Day At A Time

I hope that by documenting our experience with FXS that maybe we'll be able to help others along their journey as well.

Owned by cortneyma
Fragile X Mom

Owned by fragilexmom
eXtraordinary

eXtraordinary - thoughts about life with fragile X.

Owned by mhuelsmann
The Strattons

We are the Strattons. Our oldest was adopted from Russia. Our middle son came to us as our foster child. It took two years and a big custody trial before his adoption was finalized. No plans to have biological children as I am a Fragile X carrier but then... surprise! Along came our youngest son who was diagnosed with Fragile X at two months old. The husband is a missionary pilot and I'm in charge of all things groundspeed. Here's our family journal of just what's going on down here on the ground!

Owned by faydramarie
Fragile X Awareness | Spreading Awareness of Fragile X Syndrome

Spreading awareness by providing information, articles and links to where to find out more.

Owned by SueBride
My Child has Fragile X, Now What?

This is a blog written by "Gidget" and it's about her life with Cody, her son with Fragile X. She has a direct and sometimes blunt way of writing about her life, the emotions, and her son. I think that's worth a read.

Owned by pcircenis
Fra-gee-lay X

About my son's life journey with Fragile X and PDD-NOS, family and friends, love and laughter, and all that in-between stuff...

Owned by lilsumpn_10
Life With A FraX Daddy

My blog gives a view of life as the father of kids with and without Fragile X.

Owned by timlunceford@swbell.net
My Fragile X Boy

In early 2011 my son Connor, was diagnosed as Autistic and Mosaic Fragile X, he was not quite 2. It was both shocking news and an explanation of the incredibly hard few years that had led to that point. But I knew, that was just the beginning for us, we still have Connor's whole life ahead of us.

Owned by Nyleta

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