Holly was born on 3/11/08 with Fragile X. I started keeping a daily journal when she began an experimental drug treatment through the UC Davis Mind Institute with Dr. Randi Hagerman. Holly recieved early intervention services. Thankfully she has only show very mild delays. I so enjoyed keeping her treatment journal, I decided to create a blog to chronicle our journey.
Mostly big and some little stuff related to Fragile X: grief, joy, work, marriage, community
Our blog. :)
A blog devoted to finding the answer to my daughter's disability. Fragile-X? Autism? Or just something we never heard of?
My blog about living life with FXS.
Brody and his service dog, Millo. Come join us in a day to day adventure with adopted "triplets"
This is blog about the everyday happenings with our son, Cale, who was just diagnosed with Fragile X Syndrome.
This site is to remind us that we were chosen to be the parents and family of a child with special needs, it didn't just happen. Because of that, we know we can handle whatever is thrown at us. We just need to remember to laugh along the way!
The true story of identical twins with Fragile X Syndrome, their unaffected big sister, and their loving and devoted mom & dad.
About "Our Life" mixed with our three children who all have Fragile X Syndrome. The funny, sweet and not so funny moments.
Musings of a mom with 2 fx kids, and one without fx, life with a diabetic kid, and a quilting hobby...just whatever else pops in my head.
Life as "Me" in all my many roles...mother, teacher, police officer, equine therapist, adventure seeker... Come along and join the ride.
Our journey through parenthood with a curve ball thrown at us: Fragile X Syndrome.
I hope that by documenting our experience with FXS that maybe we'll be able to help others along their journey as well.
eXtraordinary - thoughts about life with fragile X.
We are the Strattons. Our oldest was adopted from Russia. Our middle son came to us as our foster child. It took two years and a big custody trial before his adoption was finalized. No plans to have biological children as I am a Fragile X carrier but then... surprise! Along came our youngest son who was diagnosed with Fragile X at two months old. The husband is a missionary pilot and I'm in charge of all things groundspeed. Here's our family journal of just what's going on down here on the ground!
Spreading awareness by providing information, articles and links to where to find out more.
This is a blog written by "Gidget" and it's about her life with Cody, her son with Fragile X. She has a direct and sometimes blunt way of writing about her life, the emotions, and her son. I think that's worth a read.
About my son's life journey with Fragile X and PDD-NOS, family and friends, love and laughter, and all that in-between stuff...
My blog gives a view of life as the father of kids with and without Fragile X.
In early 2011 my son Connor, was diagnosed as Autistic and Mosaic Fragile X, he was not quite 2. It was both shocking news and an explanation of the incredibly hard few years that had led to that point. But I knew, that was just the beginning for us, we still have Connor's whole life ahead of us.
|<< Previous||1 2||Next >>|