In early 2011 my son Connor, was diagnosed as Autistic and Mosaic Fragile X, he was not quite 2. It was both shocking news and an explanation of the incredibly hard few years that had led to that point. But I knew, that was just the beginning for us, we still have Connor's whole life ahead of us.
Situational stories, often dealing with Fragile X
Describing our Fragile X journey.
Fragile X - An Australian Perspective. This blog will highlight and talk about different trends and policies being highlighted around the world and how that may affect families in Australia living with Fragile X. It will also be a mechanism to advertise and describe any Fragile X events and seminars that may be scheduled in different areas around Australia It also will feature life in the Peate family and how Fragile X affects us on a daily basis.
A mother's journey through diagnosis, grief, acceptance and working towards happiness.
We are a family of 8, Mumma ,Papa and our 6 children. We have 5 children with Fragile X syndrome and 4 also have Autism
A blog about our life, feelings on Liam's diagnoses and fun crafts....
A fraggle mommy blog with absolutely no purpose at all :)
My blog about my journey with fragile x.
A place to share my thoughts on the beautiful chaos that is our life with a special needs child. Though God has called us to a very unique path, we are learning so much about life, love, and the mysterious journey of faith.
Paula's Place - Fragile X, Fascianos and More
My own personal journal about my family and how Fragile X affects it.
Raising two boys with Fragile X Syndrome
This is just a site where I can keep track of what is going on in my family's life and it helps me remember to get the camera out more often and to write things down. It is also nice to just get on there and say what I'm thinking or feeling sometimes with all that I have going on in my life. I talk about our life with Fragile X sometimes and sometimes it doesn't come up. This is just a blog about our family and our life.
Our family website dedicated to living with Fragile X Syndrome.
This & That & Fragile X
This blog is usually about being the parent of a young, extremely active, boy with Fragile X Syndrome. Other times it's about being a single mom who also happens to have Fragile X. And other times it's just about life in general.
Holly was born on 3/11/08 with Fragile X. I started keeping a daily journal when she began an experimental drug treatment through the UC Davis Mind Institute with Dr. Randi Hagerman. Holly recieved early intervention services. Thankfully she has only show very mild delays. I so enjoyed keeping her treatment journal, I decided to create a blog to chronicle our journey.
Mostly big and some little stuff related to Fragile X: grief, joy, work, marriage, community
Our blog. :)
A blog devoted to finding the answer to my daughter's disability. Fragile-X? Autism? Or just something we never heard of?
My blog about living life with FXS.
|<< Previous||1 2||Next >>|