There is just so much paperwork that one family can take and we’re only dealing with one kid here! I can’t imagine what parents of multiple kids deal with.
Right now we have a spreadsheet in the hall outside Monkey’s door tracking his sleep habits. What time he goes to bed, what time(s) he wakes up during the night and what time he gets up for the day. We have a place for notes as well to include information like “no melatonin” or “had to be woken up”, etc.
Since our visit last week with the psychologist we’ve noticed definite improvement in the school transition. Last Friday he didn’t cry at all when we left though he was whining and today he was fine as soon as I got him to the sink for his water play. We still have a ways to go but it’s not feeling as hopeless as before Christmas break. Here is hoping for continued improvement on that front.
We won’t get in to see the psychiatrist until March…quite a long way to go with interrupted sleep but we’ll manage, I’m sure!
School has been such a big issue for us for the last two months and Monkey is also having some sleep issues so we made a couple of appointments to talk to the experts.
Yesterday, we visited with Dr. G who is a psychologist. She is going to be helping us with the school problem. The appointment was to give her a thorough explanation of the issues and answer her questions. Monkey was there hanging out while we talked. He was trying to interact with the Dr. without looking at her or actually interacting…it was really cute. He kept putting his markers on the table she was sitting at and rolling them in her direction so she couldn’t write, lol. He was pretty persistent but did not make eye contact. Read more
Monkey and I were playing a game the other day. I would ask him to show me another way to read a book and he kept switching positions and posing for me. Too cute. We did 20 poses in 6 minutes. Quite the character this one!
You KNOW there was another word I wanted to use in that title.
I’m so beyond frustrated with school now. I just don’t think the teacher gets it. We’ve been trying to power our way through the morning routine for over a month now and it’s not getting better. The kid is still in tears every damn morning. When I kiss him good-bye he’s grabbing onto me and holding on for dear life and I have to pull away. It breaks my heart and I just can’t do this forever…and it feels like it’s already been forever.
He has been doing this thing where he kicks his shoes off repeatedly in the morning and then freaking out because his shoes are off. Today he apparently continued to do this throughout the day. The teacher suggested changing to shoes that he can’t remove. Yeah. No. When he can’t get them off he freaks out even worse.
I really don’t think it takes a rocket scientist to realize that the shoes are not the issue. There is something else going on here and until they figure it out and fix it we’re all going to be going through hell on a daily basis.
Quite frankly, I don’t think it’s WORTH this amount of stress for him or for us. He’s only 3.
This morning Monkey did not start whining until we were in the building and did not escalate to tears until we were in the classroom. We set Monkey up at the sink with some water and bubbles and we left him, still crying, with his teacher and his friend R. By the time we walked up the ramp and got to the vehicle one of the aides came out to let us know that he had stopped crying and was fine. That is a very good sign. Yesterday he cried for about 10 minutes after we left.
Hopefully he has a better day today and we can regroup over the weekend.
Things are not going very well right now in the school department. Monkey has been having all out meltdown fits in the mornings lately. It started with some whimpering and now it’s full out crying with snot flying everywhere fits. We’re completely wrung out. We have a game plan we’re going to work with the teacher to follow. It has to get better.
Fragile X sucks.
Monkey speak for…snowmobiles!
He just loves thisvideo on YouTube.
Every Tuesday Monkey gets out of school before lunch so we come home and have lunch. Like the past several weeks we walked in and walked into the pantry and I proceeded to ask him what he’d like to eat for lunch. Usually he just takes off and goes to play with some toys while I figure out what to have. Today it was a bit different though.
He came over to where I was standing and started pointing upwards. I picked him up and he was pointing in the direction of the crackers. I got him in front of the crackers and he started pointing to the left hand side of that shelf. I moved him to the left and he put his finger on the peanut butter. I put him down and asked if he wanted peanut butter and he pointed towards the crackers again. I picked him up and we went through the same steps and ended up at the PB again.
Monkey boy told me he wanted PB so that’s what he got for lunch!
