We received an e-mail about a study being planned at the Waisman Center in Wisconsin. This is the first study that I’ve seen that Monkey fit the age range for and we decided to inquire. We’ve been accepted into the study so we’ll be making the trip sometime next spring. In case anyone else is interested I’ll include the e-mail here.
Hello
We are recruiting families for a longitudinal research project designed to investigate the language learning difficulties of boys who have fragile X syndrome and the ways in which autism symptoms might contribute to those difficulties. Boys with fragile X syndrome between 4 and 10 years of age are eligible to participate. Participation would require visiting the Waisman Center on the campus of the University of Wisconsin-Madison. The costs for eligible travel expenses, including hotel and airfare, will be covered by the project. Because the project is longitudinal, we will ask families to return for additional testing 1.5 years after their first visit. For more information and to learn if your son is eligible, contact Dr. Len Abbeduto (abbeduto@waisman.wisc.edu or 608-263-1737) or Susen Schroeder, M.A. (sschroeder@waisman.wisc.edu or 608-263-5145) or Emily Porter (ekporter@wisc.edu or 608-263-5145). This research is approved by a University of Wisconsin-Madison Institutional Review Board for the Protection of Human Participants.
Leonard Abbeduto, Ph.D.
Charles J. Anderson Professor of Education, Department of Educational Psychology
Associate Director for Behavioral Sciences, Waisman Center
Director, University Center for Excellence in Developmental Disabilities, Waisman Center
University of Wisconsin-Madison
Waisman Center
1500 Highland, Room 463
Madison, WI 53705
phone: (608) 263-1737
fax: (608) 263-7710
I wish we fit in the age range…Wisconsin isn’t too far away, and we also have some family who live very close to Madison.
i wonder if they’ll let us join once punkin turns four in january. i have family there — what a perfect exuse to visit! i loved being a part of a study at stanford. it really was a fantastic experience, and it made me feel like i was doing something very proactive for the FX community and punkin.
You should e-mail and ask, Emily seems to be the main contact though we recieved a quick reply from Dr. Abbeduto as well.
Thanks for the reminder – I meant to reply to that email as well, but forgot. I’m not sure I’m excited about travelling to Wisconsin – that’s quite a distance for us, and J was a terror on our flight to Sacramento. Still…I guess I should at least email and ask for more info.
This will be our first flight with Monkey. We’ve been putting off trying it with him but this seems like as good a time as any to see how it goes. *fingers crossed*