Basically FX

Living with Fragile X Syndrome

He’s a growing boy…

Umma | July 27, 2006

I had to work late tonight so I missed dinner with Duhdee & Monkey. When Duhdee picked me up at the T station he told me Monkey had eaten a lot of dinner tonight though. So when I got home and fixed myself some macaroni & cheese (naturally) I didn’t expect to have to share it! Geeze, the [...]

Looooong weekend!

Umma | July 24, 2006

Yikes. The Monkey boy had a really rough weekend. He was unusually shy and anxious. Grammy and Grampy came to visit on Saturday and he cried every time they looked at him. When we ran to the store to buy the ingredients for dessert a woman spoke to him and he had another meltdown. By the time [...]

Another new sign!

Umma | July 15, 2006

Today after Monkey boy finished lunch I asked him to wipe his hands and face with a napkin like usual and he did an extra good job.  I helped him down from his booster seat and sat back down to finish my lunch and he went running straight for the bathroom…he wanted to wash his hands!  He [...]

The start of a good habit…

Umma | July 14, 2006

This afternoon Duhdee heard what he thought was someone using a power tool outside.  After a few minutes he walked into Monkey’s room because he realized that the sound was coming from there!  He found our son standing in front of his dresser with his battery operated toothbrush BRUSHING HIS OWN TEETH!
This evening when I got [...]

How do you decide if they’re talking?

Umma | July 13, 2006

Last night at the dinner table Monkey finished eating and then started his “I’m all done” ritual. He handed me some food from his plate, then his cup and finally picked up his plate to hand to me. Duhdee was already up so he said to Monkey, “Daddy will take your plate.” Monkey turned and [...]