Since Wednesday of last week, Monkey has been feeling punky1. He has a nasty, dry cough that once it starts…normally ends in puke. Hey! Have you ever seen a kid cough and puke at the same time??? Oh, man is that FUN! You need a fire hose for clean up. Ugh. Mixed in here . . . → Read More: Sicky boy
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I call that a good day. For those who are still unaware, we had to say goodbye to Copper last Friday. Even after everything we had been through with him, even knowing for weeks that our time together was limited, I was still surprised by how quickly it all happened at the end. At . . . → Read More: I laughed more than I cried today. We were “reluctant” to move Monkey to his new school, you may recall. We I threw more than one hissy fit in which I wailed over the unfairness of it all. I do still think it was unfair for the district to assign him to 3 schools in 4 years but now, with the . . . → Read More: It’s snowballing, in a good way!  No money fairy is going to swoop down and deposit $1,000,000 in my account. No job fairy is going to flit through and drop a raise, promotion or career change in my lap. FXS fairies are not going to swarm my friends and family and revise what FXS has changed or return what was . . . → Read More: Welcome to 2012! Nothing will change.  On the first Wednesday night of the month I was out to dinner with some of my most favorite ladies in the world and one of them had brought up this “elf thing.” Most of us had not heard of this phenomena. She described it in great detail and not terribly positively either, I . . . → Read More: Saved by an Elf.  Once upon a time there was a young girl living far, far away from home. She was lonely and unemployed, depending on another for food and shelter and companionship. That’s an awful lot of pressure to put on one single person, especially one who was often away from home on deployments. She was so . . . → Read More: Besties (or, A Photographic Examination of True Love)  We visited with the oncologist today and it seems that there’s more going on here than we had been told. Copper’s white blood count really impressed her, she hasn’t ever seen it get so high before. He is an overachiever there. His liver and kidney values are a little wonky but she thinks he . . . → Read More: An update on Copper. A few weeks ago we were asked to participate in a video social story for the fragile X clinic here in Boston. The clinic wanted something they can share with new patients to help them with their first clinic visit. It’s quite a good idea, isn’t it? We were not their first choice. While . . . → Read More: A Good Deed.  These days when people ask me how I’m doing, I tell them, “I’m fine.” That’s what we tell people who don’t really want to know and most people, they don’t want to know. They have enough going on in their own lives, they have their own hurts and worries…they don’t really want to be . . . → Read More: I’m not fine but I’ll be OK. |
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