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and want to do a good deed check out this website called Free Rice. It’s a multiple-choice, vocabulary quiz that adjusts the level of difficulty based on your answers. Anything you get wrong comes up again so it’s educational as well. Plus, for each answer you get right they donate 20 grains of rice . . . → Read More: If you have time to kill For quite some time now Monkey has been aware of his need to potty. He seeks out appropriate privacy and shows other classic signs but the piece that has been missing is his ability or desire to communicate to us what is occurring. Obviously, there were a few non-verbal cues that we would pick up on but he never indicated to us by speech or by sign that he’d soiled his diaper. If we took off his diaper he would let us know, in no uncertain terms, that we were to put a new one on right now, thank you very much. He had some success with peeing in the toilet or his potty chair as long as 18 months ago but he never sought us out or initiated the process. He would pee, or try very hard to pee, on request but that was it. Once he started school, going to the potty became a part of his everyday schedule. After observing the process for a while he decided he too wanted to go potty. He would join his friends in line for the toilet and pee into the toilet standing up. We were even informed that one of his great friends at school (a little boy) was being very helpful about showing Monkey how to aim. Around this time he decided he didn’t want to use the potty chair at home. We were fine giving up the potty chair for the toilet but our toilet is much taller than the pre-school toilet. He had difficulty hitting his mark, so to speak. I’m not sure if he was discouraged or just not a fan of the adult sized toilet but soon his potty strike extended from the potty chair to the toilet at home and we’ve been stuck ever since. If we ask him if he wants to go potty he will sign “all done, all done, all done” and run away. We don’t want to push the issue so we decided to back off. He continued to participate at school so we weren’t too worried. I’m not sure how long we would have elected to wait if he hadn’t discovered a rather disturbing pastime. What I’m about to share is fairly gross. I know parents of special needs kids will be familiar with this sort of thing but I want to warn anyone who is even slightly squeamish about poop to just hit the back button and skip the rest of this one. Really. Do not tell anyone but, last Friday, I played hooky! I knew it was going to be a slow day at work and I desperately needed a break so we dropped Monkey off at school and we came home. We had a nice relaxing morning and then decided we should take Monkey to the . . . → Read More: It was a fine day to play hooky! Did you guys read this article and comments? I have to warn you, it may really make you very angry which really seems to me to be the goal. Consider This: How Americans choose religions This may seem a bit odd to people but I still haven’t been tested for Fragile X. It was one of the very first items brought up by the geneticist I met with in the weeks after Monkey was diagnosed but I was not able to think about it at that time. I was . . . → Read More: To test or not to test? FXSmom over at Fragile What!? had a great idea to share memories of her life with Fragile X so I’ve decided to join in as well. I’m going to cheat for my first post though. I wrote this in 2006 about two weeks into our journey. Reading it makes me angry all over again. This really set the stage for our first year as parents of a special needs child and perhaps makes clear why I noted on Monday that our first 6-12 months were really rough ones. *** Under the best of circumstances hearing that your child has Fragile X is going to suck. It rips your heart right out of your body, without a doubt. Even in the weeks we were waiting for the test results we knew this. Anytime I would try on the diagnosis I would feel like I’d been punched in the stomach. Tears were inevitable. But how we learned that Monkey had Fragile X? Well, that was inexcusable. Monkey is, without a doubt, a mama’s boy. He will do and say things for me that he will say to no one else. Sometimes I’ll ask him to share a new word or a new skill with Duhdee and he ignores us. Sometimes he’ll even be doing something particularly cute and as soon . . . → Read More: On a lighter note. I hope no one feels judged by the following. I do not judge the decisions others make, I’m simply going to discuss the decision that my husband and I have come to regarding our family circumstances and how we’ve gotten there. Continue reading Deep (and possibly offensive to some) thoughts. We could be in real trouble with this boy. He has always been a flirt, he comes by that honestly, Duhdee, in his single days, was a notorious flirt. He made his living by flirting really, he was a bartender. So I shouldn’t be surprised that Monday’s report from his teacher was that he . . . → Read More: Monkey continues his troublesome ways. I am back. I’m just struggling to get back into a routine of any sort! I spent all of last week working and complaining that I was just so tired and, really, it doesn’t get much more interesting than that now does it? Finally, I smartened up and decided to take a day off! . . . → Read More: So, I wasn’t really lying… |
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