Umma | September 30, 2009
This is sad, sad, sad but Duhdee and I are already gearing up for some more fights with the school system. I wonder at what point we will give up and just move. We don’t want to move. Five generations of Duhdee’s family have lived in this house. We like our neighbors, a lot. We [...]
Umma | September 30, 2009
This is a supplement that was tested in boys with FX with symptoms of ADHD. There is some info on it here and here. Both of the Drs. we saw at Children’s were in favor of trying this before trying any sort of stimulant medication. They prefer the l-acetyl carnitine vs. l-carnitine which is more [...]
Umma | September 29, 2009
A quick update on the phrase du jour…Monkey seems to be tiring of it! I’m glad because this means we won’t have an entire pre-school classroom saying “Oh, crap!” but it’s also a little sad because, as bad as it sounds, I think it’s freaking cute. He will still say it once in a while [...]
Umma | September 29, 2009
Taking Monkey to the Fragile X Clinic is like being part of an entourage. From the moment we step off the elevator he is greeted by e.v.e.r.y.o.n.e. Duhdee and I are just background. Word of his arrival flies through the clinic and people we are not even scheduled to see make a point to track him [...]
Umma | September 15, 2009
Over the weekend, while Duhdee and I were at the conference, Monkey stayed with my Mom & sister. He had a great time right up until he saw our truck pull up to the house and then he started getting upset. All the stress and worry came out when he saw us, poor kid!
Anywho, my [...]
