I feel like such a neglectful blogger!

Don’t you just hate it when work gets in the way of the rest of your life?  I’m a corporate paralegal and though I have a limited client group compared to most (only 1 client) they’re a very busy, very large group.  I am responsible for 5 publicly traded companies and their approximately 450 privately held subsidiaries.  There are about 20 different real estate, corporate, litigation, environmental, intellectual property and tax attorneys who also work on this group and my job is to keep track of everything they are doing at all times.  Right now we are in the final week of preparing for a fairly large deal.  Just a smidge over $130 million will be changing hands.  Man, I wish I worked on commission.  ANYWAY, I will be back to posting  and commenting on all your sites consistently after the deal closes.

Happy Easter!

I should not encourage this!

Monkey is clearly feeling better since yesterday.  It’s so nice to see his “spark” back!  Last night Duhdee and I were sharing a hug in the kitchen.  Monkey was in another room watching TV but his radar went off and he came running to break up the lovefest.  You see, in this house, only Monkey should be hugged.  It’s quite amusing to us to hear his little feet pounding on the floor as he comes running to find us.  We’re always snickering and waiting for him to come around the corner with his big, saucer eyes.  We’re so naughty, we shouldn’t torture him.

Anyway, Monkey came running to break up the hug, as usual, but this time instead of merely separating us by a few inches he decided I needed to be removed from the room entirely.  He must have suspected that we’d just go back to hugging once he left to return to his show.  So little man put his hands on my lower back and gently pushed me out of the kitchen and into the dining room.  Then he must have decided it was FUN to make Umma move so he pushed me around the dining room table and right back into the kitchen where Duhdee was still standing.  Hmmm…not acceptable…so he pushed me back into the dining room, around the table and then into the hallway.  He finally stopped when I was about a foot from our bed. 

The whole time we’d been giggling and I turned to look over my shoulder at him and asked “Now what?”  He stood back a bit and yelled “BOOM!” which is what Duhdee makes him say before he tosses Monkey onto the bed.   “Boom?” I asked.  

Monkey grinned at me and suddenly pushed me, face first, onto the bed!  “BOOM!”  he yelled again before dissolving into belly laughs.  I couldn’t help but laugh in return and so we both lay there on the bed, howling with laughter and Monkey was looking me right in the eye (!) as we did.  It was such a funny and sweet moment.

I know, I shouldn’t ecourage the whole “pushing” thing but it seems relatively harmless.  Right??? 

We’re really in for it with this kid!

I checked my e-mail today and found an e-mail from YouTube Support thanking me for reporting a server error.  At first I thought it was spam but then I looked a bit closer and saw that someone HAD sent YouTube a report, from my YouTube account, stating “kk ll.”

First of all, there is only one YouTube user in this house and, secondly, there’s only one person in this house who types like that.  I can’t believe Monkey’s sent in his first support ticket and he’s not even 4.

Isn’t it always the way?

We’re back to crappy sleep here but there is a reason.  Monkey and I are sick, oh the joy! 

We’ve managed to come down with some sort of virus that includes a racking cough, fever and a general feeling of yuckiness.  We’re both tired but we can’t sleep well because we’re so uncomfortable.  Work is so very busy right now that I can not stay home.  Even worse, I need to work late most nights.  Monkey has stayed home from school with Duhdee all week but it doesn’t seem to be helping.  His temp is below 100 but he is very whiny, very tired and not sleeping.  Poor Duhdee, it’s a wonder he hasn’t taken to drink!

I refuse to end this on another sour note, it runs contrary to my need to find the silver lining.  Hmmm…well isn’t this a pickle?  I can’t think of anything new or fun to share! 

I guess I’ll just settle for a sweet moment Monkey and I have begun sharing in our time of sickness.  Monkey has noticed that, although we are really strict about making him sleep in his own bed most of the time, we relax our standards when he’s not feeling well.  As if to further sweeten the deal, however, he has taken to pausing as he crawls over me to find an open spot in the bed just long enough to give me a nice cheek to cheek hug.  It takes me long enough to recover from my moment of “Awww” for him to plant himself securely between us and pull the covers up to his chin.  Only a monster could remove him from the bed at that point 😉

That’s all I’ve got.  I’m a sucker for a sick Monkey 🙂

Rough patch.

I’ve hit a rough patch here. We had another appointment at the Fragile X clinic and they always throw me off no matter how nice the folks there are. Having to outline, in great detail, all the ways Monkey isn’t “normal” really gets to me. It makes all of the Fragile X stuff seem so much bigger than it is in our every day lives.

I always end up spending too many hours after the fact dwelling on all the questions the Dr. asked and my answers. I second guess my answers, did I overstate or understate the positives and negatives? THEN I start to second guess whether we’re doing all we should for him. Should we have him enrolled in more therapies, more activities? What therapies? Should we be doing more vitamins or supplements? What vitamins? What supplements? Have we totally screwed up by letting him watch TV? We never used to allow it.  Is that why he can no longer pay attention to an entire story?

Uh, well…I think you get the idea. All my insecurities and fears get really big and try to drown out the really good stuff, like the fact that Monkey spent a very pleasant evening with us and his paternal grandparents last night. He will normally not stay in the same room with them but he did so last night with a smile. I’m trying really hard to focus on that right now.

When you put it this way, it doesn’t sound very fun.

Mom, Mommy, Mama, Ma
Dad, Daddy, Dada, Pa, Pop


Long term, team players needed, for challenging permanent work in an often chaotic environment. Candidates must possess excellent communication and organizational skills and be willing to work variable hours, which will include evenings and weekends and frequent 24 hour shifts on call. Some overnight travel required, including trips to primitive camping sites on rainy weekends and endless sports tournaments in far away cities!

Travel expenses not reimbursed. Extensive courier duties also required.


  • The rest of your life.
  • Must be willing to be hated, at least temporarily, until someone needs $5.
  • Must be willing to bite tongue repeatedly.
  • Must possess the physical stamina of a pack mule and be able to go from zero to 60 mph in three seconds flat in case, this time, the screams from the backyard are not someone just crying wolf.
  • Must be willing to face stimulating technical challenges such as small gadget repair, mysteriously sluggish toilets and stuck zippers.
  • Must screen phone calls, maintain calendars and coordinate production of multiple homework projects.
  • Must have ability to plan and organize social gatherings for clients of all ages and mental outlooks.
  • Must be willing to be indispensable one minute and an embarrassment the next.
  • Must handle assembly and product safety testing of a half million cheap, plastic toys, and battery operated devices.
  • Must always hope for the best but be prepared for the worst.
  • Must assume final, complete accountability for the quality of the end product.
  • Responsibilities also include floor maintenance and janitorial work throughout the facility.

None. Your job is to remain in the same position for years, without complaining, constantly retraining and updating your skills, so that those in your charge can ultimately surpass you


None required, unfortunately.
On-the-job training offered on a continually exhausting basis.


Get this, you pay them!  Offering frequent raises and bonuses. A balloon payment is due when they turn 18 because of the assumption that college will help them become financially independent. When you die, you give them whatever is left.
The oddest thing about this reverse-salary scheme is that you actually enjoy it and wish you could only do more !


While no health or dental insurance, no pension, no tuition reimbursement, no paid holidays and no stock options are offered; this job supplies limitless opportunities for personal growth and free hugs and kisses for life if you play your cards right.

I am likely cursing myself but I’ll knock on wood and hope.

We’ve seen some really nice improvements with Monkey lately.  He’s becoming really vocal and attempting more and more to repeat words when asked.   He has also spontaneously used a couple of new words this week (water and Tigger.)  Typically, we will see the improvements weeks before the teacher and the assistants do but they’re hearing all the same words and sounds from him at school.  It’s nice that he’s comfortable enough to “show off” for them.

Another area of improvement is sleeping.  Out of the last 9 nights he has slept straight through for 6 or 7 of them.  He slept straight through 6 nights in a ROW at one point.  Bliss!  He’s still sleeping on the floor and we have eliminated the melatonin.  He’s getting about 10 hours of sleep each night now which is just so nice.  I’d love more but, after the awful stretches we’ve had, I’ll take what I can get!

I think we may have also turned a corner on the school drop offs but it’s a little soon to know for sure.  I thought that Friday might have been a fluke but he has done really well this week too. 

Monday morning we used a combination of tickles and M&Ms as rewards and he walked to within 6 feet of the classroom door fairly happily.  Once Duhdee removed his coat, Monkey skipped the water play and took Duhdee straight to the swing room where all the other kids were.  Once in the swing room he let go of Duhdee’s hand and ran and jumped into one of the large puffy cushions and promptly forgot all about us.  He was still rolling around on the cushion when we left.

Tuesday we repeated the tickles and M&Ms system and he reached the same location outside the classroom door before he refused to walk further.  He was a bit whiney as Duhdee was removing his coat but nothing too awful.  Duhdee set him up at the sink to do his morning water play and walked away.  The assistant who was going to take over was still engaged in another activity so we stayed to keep an eye on him but from a distance and he never looked for us.  Once she was clear to join him we left and he was still happily filling and emptying his cups and toys.

So, I suppose, if McWhinerpants comes along with all these really cool improvements, maybe he can stay a little while longer.

Effective ADHD Treatment Found for FX

Very interesting!

Effective ADHD Treatment Found for Children with Fragile X Syndrome

ScienceDaily (Feb. 21, 2008) — Fragile X syndrome (FXS) is the most common hereditary form of mental retardation. Many children with FXS also suffer from attention deficit and/or hyperactivity disorder (ADHD), which complicates social relationships at home and at school. Although stimulant medication such as Ritalin® is often successfully used to treat children with ADHD, studies have shown that while it is effective in children with mental retardation, it also causes side effects such as increased irritability, decreased verbalization and social withdrawal.

A previous study showed that L-acetyl carnitine (LAC), a form of the amino acid carnitine, significantly reduced hyperactive behavior in FXS boys with ADHD who were treated with it for one year without causing adverse side effects. The same authors have now conducted a randomized, double-blind, placebo-controlled multicenter study to determine the effectiveness of LAC in a larger group.

Led by M. Giulia Torrioli and Giovanni Neri of the Università Cattolica in Rome, the study involved 51 boys between 6 and 12 years old with FXS and ADHD who were treated in one of eight centers in Italy, France and Spain. Each patient followed the treatment for 12 months, which involved 500 milligrams of LAC or a placebo given twice daily. Patients were evaluated by an interdisciplinary team of child neuropsychiatrists and psychologists at the start of the study, after one month, six months and 12 months. The effects of the drug and placebo were evaluated using a set of neuropsychological tests to assess behavior.

Those treated with LAC demonstrated reduced hyperactive behavior and increased attention. No side effects were exhibited, confirming that LAC is a safe alternative to stimulants. The patients treated with the placebo also showed reduced hyperactive behavior, although not nearly to the extent as the LAC-treated patients. The patients treated with LAC also had significantly improved social ability compared to the placebo-treated group. Both groups took intelligence tests, but LAC did not improve overall intellectual functioning.

“We propose that LAC be recommended as a treatment of ADHD in FXS children,” conclude the authors, “since it effectively reduces hyperactive behavior and improves social abilities without adverse side effects.” They also suggest that these results may be applicable to children with autism, who also do not easily tolerate stimulants.


Whiny McWhinerpants has moved in.

I want my Monkey back!  Is the incessant whining thing a delayed 3 or is it 4 knocking on the door?

Monkey has never been a whiny kid but for the last few weeks he’s been sitting down on the floor and whining a lot and over nothing.  The worst (or best, I can’t decide) part is that when he does the whining it is accompanied by the most serious puppy-dog eyes I’ve ever seen, lol.  I laughed outright the first couple of times because it was so stinking cute but now I stiffle it.  I don’t want to scar him (or encourage him :))

So is 4 the whiny age or is 3 finally catching up to us?