Every morning, this boy of mine wakes to a world that is too bright, too loud & too fast. Every day we pray that we can provide him enough love, comfort and security to get him through to the end of the day whole and happy.
Every day we give him his medications, to hopefully smooth the rough edges of the world that will tear at him. Every day we give him his “firsts” and “thens” to sooth the anxiety that can rear it’s head without warning. Every day, I fear we will fail. Some days the fears come true. Some days they do not.
Regardless of whether the fears were justified or not, every night, Caleb hits reset. He greets every morning with joy. After 10 years of living in a body with skin too sensitive and a brain too connected to give him the peace everyone else takes for granted….this boy gets up every morning and shines.
A couple months ago, on a whim, I reached out to a friend who also lives this life and knows what this world is like to boys like mine, like his. I gave him a wish, it was really a prayer though he will be very amused to hear that I sought him out for such a thing. I needed something…something for those days when I am too dejected or worn down by fragile X to imagine for myself what this life is bringing us too. I wanted something to put in front of Caleb to show him…SEE, this is what you are…we see you, we love you, we believe in you.
How could we not when what we see when we look at you is this?
One thought on “The Mighty C”
RT @BasicallyFX: The Mighty C: http://t.co/e3FPurY7Tx #fragileX