What is life with Fragile X like?

This search string comes up in my stats over and over again.

For me, life with Fragile X is full of worry, uncertainty, anger, exhaustion and grief.  It is also full of laughter, amazement, joy, gratitude, wonder and, most of all, incalculable love.

3 thoughts on “What is life with Fragile X like?

  • March 10, 2010 at 10:53 am

    I would LOVE for others to blog about it or leave comments to share what life with Fragile X is like for THEM. If you blog about it, let me know so I can link to you!

  • March 11, 2010 at 9:45 am

    Guess I’d better blog about it on a GOOD day. Ha, Ha. JK Praise God, we have lots of good days.


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