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Last night we met with our special education advocate and today it has me thinking about how important team building is for our family. We began the process of building a support team before we received our Fragile X diagnosis. Monkey began receiving early intervention services when he was 18 months old and . . . → Read More: Who is on your team? that school drop offs continue to improve! He’s still not quite getting to his classroom but he is walking to within 20 steps of the classroom door before he needs to be carried the rest of the way. We’re working at it, hopefully we’ll be in good shape within a week or two. Of . . . → Read More: I am happy to report… Last night Duhdee and I took my mom, dad and sister to a Red Sox game. It was so much fun! It was raining but we were under the roof. The game was delayed but we had plenty of time for people watching. Tim Wakefield was pitching but last night was one of the . . . → Read More: Red Sox! This is a very hot topic right now, you can read great pieces here and here. I just wanted to toss in my two cents. I feel incredibly disappointed by the actions of American Express. I understand that tucked away in their FAQs they explained that voting was only going to matter for the . . . → Read More: The American Express Member’s Project debacle. Monkey said “Bear” several times. He’s been saying an approximation for some time, generally “Bee” or “Be-ah” but clear as a bell this morning we heard him saying “bear!” We excitedly told the teaching assistant and she went over to speak to him. He was, at that time, playing with blocks. When she asked . . . → Read More: So, you’ll never guess what I heard today! OK, not really…but I’ve been thinking lately about how good Monkey is, and always has been, at figuring out his own sensory needs. We tried a brushing program for a period of time when Monkey was two. We saw imediately that it helped and he saw immediately that it helped as well. He very . . . → Read More: A sensory integration prodigy. We all know you can predict absolutely nothing about the school year after only two days. This is just a mere update. I don’t consider any of this indicative of how things will progress, OK? I’m still fully prepared for year two of unabating school hell*. So. Day 1. Monkey refused to walk into . . . → Read More: Two days in. We’ve been talking to Monkey for the last few days about starting school. We’d put it off because of the IEP meeting issue and not knowing what to prepare him for but, obviously, if we’re not meeting until the 2nd week of classes we needed to prepare him for starting in his previous class. . . . → Read More: First day of school! First, we need to get out and run. We took a few too many days off while I was on vacation so now we have to stick to the every other day plan to stay on track. Then, we are having a cookout with a few neighbors. There are about 15 of us total. . . . → Read More: Just a jam packed day ahead here! It’s been a while since we’ve had a serious storm here but that should change today. An outer band of Hanna was expected to reach the Massachusetts coast this morning, dumping up to 3 inches of rain. That band will move, allowing for a clear day before the body of Hanna reaches the area . . . → Read More: Hello Hanna! |
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