Basically FX

Living with Fragile X Syndrome

The American Express Member’s Project debacle.

Umma | September 11, 2008

This is a very hot topic right now, you can read great pieces here and here.  I just wanted to toss in my two cents. 
I feel incredibly disappointed by the actions of American Express.  I understand that tucked away in their FAQs they explained that voting was only going to matter for the final round [...]

Fragile X 5K Road Race/Walk

Umma | August 20, 2008

Click the picture for more information.

National Fragile X Awareness Day

Umma | July 22, 2008

I am the poster child for the necessity of this day.  Although Fragile X has been in my family for many generations and showed its face for the first time in full mutation form in my generation, I was completely unaware of its existence until my own son was unexpectedly diagnosed. 
 
Today is a day [...]

Woah baby.

Umma | April 11, 2008

Did you guys read this article and comments?  I have to warn you, it may really make you very angry which really seems to me to be the goal.
Consider This:  How Americans choose religions

Effective ADHD Treatment Found for FX

Umma | March 3, 2008

Very interesting!
Effective ADHD Treatment Found for Children with Fragile X Syndrome
ScienceDaily (Feb. 21, 2008) — Fragile X syndrome (FXS) is the most common hereditary form of mental retardation. Many children with FXS also suffer from attention deficit and/or hyperactivity disorder (ADHD), which complicates social relationships at home and at school. Although stimulant medication such as [...]