Fragile X LINKS Group of Eastern Massachusetts

Fragile X LINKS Group of Eastern Massachusetts

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The long awaited, much anticipated, appointment.

6mg of melatonin/night instead of 3mg for the next two weeks and then a another $650, 45 minute, follow-up appointment to discuss a stimulant.  And maybe a cardiologist and sleep-study…

I am … not going to comment further.

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3 comments to The long awaited, much anticipated, appointment.

  • Aimee

    Good Luck with the sleep issues. Nathan had them for a while, but since he stayed in his room mostly quiet, we didn’t really think of it as a problem. We’re giving him 1.5 mg of Melatonin and it knocks him out and has had him sleeping through the night for about a month now. It’s amazing how every child processes things so differently. I will say, though, that with the melatonin and sleep- Nathan’s behavior has changed tremendously. He was yelling all the time, I had to stop taking him places with me because he’d just let out this super loud yell. It wasn’t when he was mad, he mostly just liked it. Well, he has stopped for now. I’ll take it! I imagine you will all be much happier when Monkey sleeps through the night. Have a restful weekend!
    Aimee

  • Good Luck! We’ve all been there, and you’ll get through it!

  • Umma

    Thanks ladies. We will survive, we’ve made it this long!

    Aimee, we had great luck with the melatonin at one point. Back in the day he would stay awake in his crib for HOURS every night…unable to sleep. The hope is that this increased dose will help him stay asleep. The Dr. gives it a 50/50 shot of working.

    Since his big issue at school right now is his ability (or lack thereof) to stay focused on a task…finding a way to get him to sleep can only help. The sleep charts showed that he’s losing about 4 hours of sleep a NIGHT when school is in session.

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