How to really confuse your kid.

Yesterday morning, as we were trying in vain to get out of the house on time for school, Monkey planted himself firmly in front of The Tree and pointed over and over at the angel on the top of our tree.  Finally, I asked Duhdee to please look up the word “angel” on our handy, dandy online ASL dictionary so we could teach it to the child.

Duhdee did as I asked and when I finished brushing my teeth I found him diligently signing and saying “Angel” to Monkey whenever Monkey pointed.  Awesome.  Duhdee showed me the sign and I repeated the process with Monkey when Duhdee rushed off to do some last minute chores. 

When Duhdee and Monkey were in the bathroom brushing their teeth together I happened to look at the web browser Duhdee had left open and I saw the woman signing over and over and over.  I stepped closer and cracked up.  Duhdee has a bit of trouble with spelling, you see, and when he searched for “Angel”  he actually looked up “Angle.” 

Haha!  Poor Monkey.  We’re all set now though.

Oh, Christmas Tree! Oh, Christmas Tree!

Yesterday, we decided to go on our annual Christmas Tree Hunt!  We drove out of the city toward our favorite hunting grounds armed with nothing more than hats and mittens ((Except for me who was too focused on everyone else to remember to grab my own, so I was SOL.)) to track down the ever elusive, perfect, Fraser Fir. 

Upon arrival we stepped out into the lightly falling snow and found ourselves ankle deep in dark, sucking mud.  After kicking ourselves for not going last week when the ground was frozen we set off to collect a saw.  Enroute to the saws, Monkey spied the hay ride and was immediately thrown off course.  I hurried Duhdee along so that we could ride to the top of the hill in style and comfort behind the exhaust belching tractor but, alas, the ride was full.  We promised Monkey that we’d come back and ride it later and set out hunting The Tree. 

We spent 20 minutes tromping through a cold, snowy field dismissing all that we saw.  Too short, too tall ((These words only ever come out of Duhdee’s mouth. I happen to think that there is no “too tall” when it comes to The Tree but Duhdee insists that the ceiling is only so high.  Grinch.)), too skinny, bald on one side, etc.  Finally!  Duhdee suggested we walk back down to where the hay ride picks up so we could ride to the top of the hill and look up there instead.  You didn’t think we’d find a tree in 20 minutes did you??

So we retraced our steps through the mud and snow to the hay ride pick up location only to see it disappearing back up the hill.  We missed it.  Duhdee suggested looking in the field at the base of the hill so that we would not miss the next ride.  Unfortunately, none of the trees in that area were shorter than 20′ which is considerably taller than Duhdee will allow.  So.  We wandered in the cold, muddy field until the hay ride reappeared. 

This time we were ready.  Monkey was so excited that he nearly mowed down the other little boy who was trying to get on the trailer.  Oops, sorry!  Merry Christmas?  Ugh.  Everyone got situated, the tractor belched out it’s foul stench and we were off!  Monkey was thrilled.  We rode all the way to the top and he wore a huge grin the entire time.  Then we reached the top and stepped off.  Monkey sat down on the ground in protest.  He didn’t want to get off.  When that didn’t work.  He cried.  Big, fat, tears slid down his cheeks as the tractor drove away.  ((OK, so maybe, in the true spirit of things I should have just let him ride back down, right?  But that is hindsight, at the time I could no longer feel my fingers and I thought one of my toes had possibly fallen off so, yeah.))  I made him wave bye-bye and dragged him into yet another field of trees. 

Never fear, however, it was not all in vain.  After three or four more circuits of that field, a few tears and a lot of mud Duhdee decided he’d solved our dilemma.  What we needed to do was go back to the field we’d started in.  When my eyes bulged out of my head, he asked me where I’d suggest going.  I totally get a millon gold stars for only thinking, very quietly, in the deep, dark recesses of my mind “HOME DEPOT“.  Don’t you agree?  What I did was say, cheerfully, “OK!” And we set off down the hill, through the mud to the exact spot where we’d started an hour before

Once again we walked through the cold, snowy field but this time it was a Christmas MIRACLE.  The trees were not all objectionable anymore.  In fact, they all looked perfect.  I pointed out tree after tree after tree saying “How about THIS one?”  Duhdee only looked at me like I’d lost my mind a few dozen times.  Finally, we narrowed it down to two trees that might be a little short but, seriously, I didn’t care anymore.  I told him to just pick the taller of the two.

Once he’d determined which of the two trees was condemned he pulled out his borrowed saw and cut that sucker down.  When Monkey saw Duhdee kneeling on the cold, wet ground working he decided to finally stop crying and help.  He first tried supervising while staying on his feet but the view was not very good so he finally got down on his knees and peered under the tree to offer his best advice on the proper cutting technique.  He did a great job too, the tree was cut perfectly…except for the one spot where I pulled on the tree and I shouldn’t have so it was slanted.  Oops.  But other than that, and Monkey cannot be held responsible for my ignorance, it was a job well done.

We hurried back to the barn and gave up our tree to the wrapping machine.  While Duhdee tied the tree to the roof, Monkey and I sat in the truck sipping hot chocolate with the heat on high.  Gradually we were restored to good humor and by the time we got home I was even in the Christmas spirit again.  Truly a Christmas Miracle in and of itself. 

This morning, Monkey woke to a completely decorated house.  He loves the tree.  He is obsessed with the angel.  He wouldn’t even eat breakfast, he wanted to stand and touch the tree and tell us how soft it was.  When we finally were able to get him ready for school, only a half hour late, he cried big, fat tears once again as we left the tree and walked to the truck.  I promised him it would be there when he got home.  I do hope this wears off by mid-January so we can take it down!

And, in case you’re curious, we’ll totally go cut our own tree again next year too.  What can I say, we’re gluttons for punishment when it comes to making “memories.”

Dude, that was mine!

Yesterday afternoon I grabbed a yogurt. Monkey first tried to tell me I didn’t want one at all but when I insisted that I did, in fact, want one he decided to supervise. He began by just watching me eat but when I was nearly finished he instructed me to put it down on the table. As soon as I did so he signed “all done” and told me “no!” I wasn’t even supposed look at it after that! Whenever he caught me looking at him, as he pilfered the last of my snack, he’d tell me no. When I told him “Dude, that was mine!” he just laughed.

Punk.

Guest Post – Grammy (Duhdee’s Mom)

Last Saturday, Duhdee and I went to his highschool reunion and Monkey stayed with his Grammy and Grampy.  This is the report we received.

Hi there,
            Just thought I would enlighten you on the experience we had taking care of Monkey on the evening of your reunion.  Simply “Amazing”.
             First he and his cousin played quite nicely in the playroom and there were no disagreements.  We checked on them every once in a while.  I was cooking supper in the kitchen.  Once it became suppertime, I informed both of them and shut the light off in the playroom.  Monkey seemed to be looking around for his parents but I just led him to his chair in the kitchen and he was fine.  He ate 2 hot dogs and a scoopful of Mac n cheese.  Grammy was a little apprehensive with his cousin watching his eating habits but she did fine also.  
             After dinner, Grampy took his cousin and uncle home and Monkey and Grammy played with his train set.  Grammy got down on the floor and got the train set together in record time.  He got into the middle of it and we played with the trains all the while watching whatever football games on the TV.  After a while Grampy came home and got to appreciate Monkey’s ability to keeping the train on track and also knocking it off track.  He also handed the train to me and made me switch all of the cars around in their position.
             We then got changed for bed around 8:30 and laid down on the floor but he wanted to go back into the living room and play with the trains some more.  So being a typical Grammy, we spoiled the little Monkey.  Then I could see that his ability to play with the train was getting a little tired so we went into the bedroom and lay down.  He got a backrub which he seemed to enjoy.  Then not sure if he slept with the light on or off, we played a game of shutting the light off and on.  He kept on telling me which to do.  So I left the room and we could hear him playing with the toys a little.  After a few minutes I went back in and laid him back down with his covers on and shut the light.  I left the door open and the light on in the bathroom because I didn’t need him to be scared of the strange place he was in.  Just after a few minutes he was out like a light!!
             We were quite surprised and happy to have him at our house.  Grampy said it was the best birthday present he ever had.  Monkey has matured so much in the past few months and was just such a pleasure to have him here.  More than willing to do it anytime when Mommy and Daddy need to go somewhere.

Neat, eh?

I, too, measure up.

Thanks to FXSmom, I now have a penis bling too!  Check it!

 

1. Say one nice thing to a man in your life.

This pretty easy, I have a most awesome hubby so I say nice things to him ALL the time.  I tell him I love him single day, I compliment his cooking, I tell him what a great dad he is and I grab his bum pretty much daily ((sometimes actions speak louder than words with my man)).

2. List at least six ways that you measure success in your life (or for your blog).

A successful me = a happy Monkey, a content hubby and proud parents

A successful blog = comments, linkage and new Fragile X Webring members!

3. Assign this award to six other blogs and leave them a comment telling the blogger that you’ve assigned them this award.

I’m awarding this to…

http://xdadxdad.wordpress.com/

http://lifewithmyxmen.blogspot.com/

http://www.theotherlion.blogspot.com/

http://www.paulafasciano.blogspot.com/

http://www.mymeck.blogspot.com/

http://fragilexpedition.blogspot.com/

As if a cold was not bad enough…

now Monkey is limping!  It’s been a long week here, Monkey has a cold and has woken up coughing 4-5 times each night for the last 4 nights.  He then crawls into bed with us and keeps us awake with his hacking fits.  Yay!

Then, Duhdee got sick.  And let me tell you (so he won’t have to, he’s losing his voice) he is the sickest man this world has ever seen.  He’s so pitiful that Monkey is comforting him.  

Then, I got sick.  Not as bad as my poor boys but enough to leave me feeling fuzzy in the head.  Add the sleepless nights and I’m pretty much a lump of useless flesh.

Then, our youngest dog got a wild hare ((I always thought it was a “wild hair“, shows what I know.)) and leapt off our bed, onto the hardwood floors, skidded wildly out of control and knocked Monkey flat on his bum.  Monkey stood up and is now limping.  There is no visible bruising or swelling but he’s clearly favoring the leg.  We’ll take a look at it this afternoon and decide if a Dr’s visit is in order.  Like we’ll be able to follow Dr’s order anyway which we all know will be “Keep him off it.”  Hahaha, they’re so funny.

Oh, no.

For the last few weeks there has been some construction at the intersection of our street.  This morning the traffic situation was so bad that we elected to take a different route to school. 

Even though we kept telling Monkey we were going to school, I don’t think he really believed us.  He was really excited when we passed the train station and a bit confused when we didn’t stop there so I could go to work but he stayed sitting quietly, observing us.  It wasn’t until we reached the road to turn towards his school that Monkey commented.  Duhdee and I had to surpress giggles when we heard, from the back seat, a quiet “Oh, no.”

Parent/Teacher conference.

We had our parent/teacher conference yesterday afternoon. A few of the team members were unavailable due to illness but we still had a mix of teachers and therapists. We elected to spend the time just talking with each of the participants rather than reading the official report, at some point I should read it I suppose.

Monkey has now been in his current classroom for 6 weeks, which is just insane, it feels so much longer! They are seeing a lot of positive changes in him. The boy they are seeing sounds much more like the little boy we know. Of course they love him, who wouldn’t? They commented on what a sweet, gentle soul he is. They commented on how willing he is to work when motivated. They commented on how bright and manipulative he can be, hee. Yep, they were definitely talking about our boy.

This meeting was so much different than our progress report meeting last February. I actually asked Duhdee, just before we stepped into the room, “So, what do you think? Do butterflies just fly out of his butt?” That was the tone of our last progress report. The boy was brilliant and charming. He had met all of his goals and would be applying for Harvard by age 15! I’ve mentioned before that we went along with it because, really, what parent doesn’t want to hear that? After the cold slap of reality we received in June we had vowed we wouldn’t be taken in again.

We didn’t need to be so worried. This teacher just gets it. We heard lots of cute stories, we heard lots of talk about how well he transitioned into the classroom and how open he now is to learning. We also heard about the more challenging parts of his day and how they are addressing those challenges. We shared ideas, we asked for suggestions on things we can work on at home…it felt like an actual team. Stunning.

The teacher also wasn’t shy about discussing the “harder” questions. We mentioned that we were going to pursue another autism evaluation with a specialist who is familiar with both autism and Fragile X. She wanted to know how we’d feel if he kept that label after the evaluation.

She shared her concerns that his signs are still very much approximations and would not be understood by most people. We acknowledged that his fine motor delays are going to limit how effective he will be with signs and encouraged them to continue down the path of augmentative communication devices ((They’re considering the Go Talk, I need to research but is anyone familiar with it?)).

She asked how we were feeling about next year, we have the option of letting him continue in his current placement for an additional year or continuing on to kindergarten. Duhdee and I are comfortable with him taking another year in his current placement, which she agreed with but she also encouraged us to register him for kindergarten in January ((We need to register in January in order to be able to avail ourselves of the school choice options.)) so that the kindergarten option is still there for us if we change our minds in May.

All in all it was a great meeting. I did ask, just before the meeting broke up if there was anything in the report that would be shocking. I suppose I should have asked if there was anything in there that was contradictory instead since that was the issue last year. A+++ verbal reports and F written reports. The teacher laughed and assured us that there will be nothing surprising in the written report. Now won’t that be a nice surprise, in and of itself?

Keeping up with the potty theme.

We bought Elmo’s Potty Time last spring, hoping it might interest Monkey and jump start our potty training efforts.  It would not be an understatement to say that Monkey hated this DVD.  He wouldn’t even watch it long enough to see Elmo, as soon as he heard Elmo’s voice he would shut the DVD off and/or run from the room yelling “No! No! No!”

Over the last week Monkey started to soften toward the DVD and now he’s full out obsessed with it.  I hear “Emmo!” constantly.  I am more than willing to turn it on upon request so he has seen this DVD about 6,000 times this weekend.

Then on Sunday night, Monkey stripped off his diaper again (in full view this time) and, after throwing it in the garbage, disappeared into his bedroom.  He returned a few minutes later carrying a pair of the long ignored “Cars” underwear I had bought months ago.  He then stood and got them 1/2 way on before he asked for help.  What the heck has gotten into this kid?

We’ll take it but sometimes he makes my head spin!