13th International Fragile X Conference in Miami, FL!

The National Fragile X Foundation has released details about the upcoming International Conference. It will officially begin at 2pm on July 25, 2012 and last through July 29, 2012. Last year a lot of people left Sunday morning and missed the final Q&A which is a shame, it’s not often that you get a chance to quiz some of the leading practitioners in the Fragile X world on issues you’re having at home!

The conference hotel rates are good for 4 days before the conference and a day after, I would suggest that you take advantage of that if you want to see Miami…the conference is jam packed so there won’t be a ton of downtime for playing tourist unless of course you’ll be skipping the informal gatherings after dinner with all the parents who party.

Once it gets closer I’ll put up some tips for first timers but I have one for now…I know the temptation to bring your kids is strong, it’s FLORIDA for pity’s sake. I think it’s a great opportunity for slightly older kids but if your kids are young keep in mind that the conference sessions start early, we were downstairs by 7 each morning, and run pretty much non-stop until late afternoon. There are breaks for lunch but there are also often lunch gatherings as well.

It is going to be WAY busier than you can even begin to imagine. It will be “you’ll-want-to-be-in-4-different-places-all-at-the-same-time” busy and once dinner is over you’re going to want to decompress or sleep most likely…and sitting in your hotel bathroom on your phone or laptop, while the kids sleep, might not be the ideal way to end a very long day.

BUT you’re all grownups, do as you will 😉



8 thoughts on “13th International Fragile X Conference in Miami, FL!

  • October 14, 2011 at 1:01 pm

    Since it came up…I wrapped up the draft 😉

  • October 14, 2011 at 2:10 pm

    Yes, Duhdee and I will be there! I’ll be better prepared this time, I was sort of set on “stunned” at the Detroit conference so I didn’t meet nearly as many folks as I wanted too!

  • October 15, 2011 at 7:45 am

    I’m going! I never get to spend time with as many people as I plan to. But it is an awesome time and this will be our fifth conference. When it’s over, Eric and I are planning on going on a five day cruise. 🙂
    Kristie´s last blog post ..Morning Randomness

  • December 24, 2011 at 10:11 am

    how much will it be for my son and I and we from New york

  • January 6, 2012 at 11:17 am

    We intend on going for the first time this year. However, money is very tight. I’m curious why I’m unable to find any information on the cost of the conference. Can someone tell me what the cost has been in the past so that I have an idea of what to expect? We are probably going to have to drive from Milwaukee, WI since my husband does not like to fly and the boys have never flown. We plan on bringing our 24(non-FX) and our 21(FX) boys with and try to make a little vacation after the conference. We’ve never really been anyway with the boys so this will be quite a big deal for us all. Probably a bit of sensory overload for out FXer, but we’ll see.

    Anyway, very excited to finally go!


    • January 6, 2012 at 12:08 pm

      Hi Carol!
      The cost of the conference hasn’t been determined yet. It will be announced on February 1st. It *should* be about the same as 2010 which you might be able to locate. There are also scholarships available with priority given to first time attendees. The application period will open on Feb 1st too.

      I hope you are able to make it!


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