Cupcake comes to play.

Yesterday morning, Cupcake came over to play with Monkey for a while.  Let me tell you the cuteness is nearly unbearable when these two get together.  They just totally love each other.   It started off a bit rocky because although Monkey is great at sharing other kids’ toys he is not so great at sharing his toys.

Case in point…he even resorted to sitting on toys (that he doesn’t even play with normally) just to keep them out of Cupcake’s hands. 

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After a few minutes and a few gentle reminders to share he was doing great.

The favorite activity of the day however was this…

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Staring out the window watching Duhdee use the snowblower.  They’d even knock on the window to try to get his attention.  How cute are they? ((No, Monkey isn’t standing on anything.  They’re 3 years apart and he does just tower over her.  I think she was actually on her tippy toes trying to see out, lol.))

I take back every mean thing I’ve ever said about…

Barney.  Cupcake was over visiting a while ago and we watched Barney.  Monkey watched a video of kids riding bikes with a furrowed brow and then he walked over to his bike (which he has repeatedly tried to get us to remove from his sight,) signed “bike” and said “on.”

You could have blown knocked me over with a feather.  I’m amazed by how well he does considering he has not ever done this at home before (he has ridden a trike in the hall at school.)

Snow Day and the Bathroom Stalker.

Yesterday afternoon it started snowing.  Not a big deal, I do live in New England, but it is still snowing.  School was canceled which is a pretty big deal, Cambridge hardly ever cancels school.  Work was also deemed optional by the powers that be since 3 of our 3 offices were “adversely affected” by the storm.  Woot!  I’ll take a snow day, even if it means snow. Boo!

I keep meaning to tell you about my Bathroom Stalker but never seem to remember.  He just refreshed my memory though.  Whenever I go in the bathroom, he races to come watch.  When he was little it wasn’t a big deal but he’s getting to be a big boy now and Mommy really could use some alone time once in a while, even if it’s only when I’m in our tiny bathroom.  So, I’ve begun locking the door.

This development makes my little stalker furious.  When confronted by a locked door he starts knocking politely.  He gradually ramps up the knocking until it’s noticeably less than polite.  He will then grab the door handle and shake the door until I am afraid he’ll knock it right off the hinges.  I will tell him that he needs to wait a minute, I’m almost done (I am such a liar) and he will then lay down on the floor in the hallway so he can stare at my toes.  He’s not even the slightest bit embarrassed when I catch him laying their either.  He’ll just smile, wave and say “Hi!”

Emergency situation? What could that be?

We were very, very grateful to have diapers left last night.

Around midnight I went to Monkey’s room to check on him before going to bed and I noticed an odor.  A very unpleasant odor.  Monkey had diarrhea in his sleep.  He was so furious that we woke him up and put him in the shower.  He finally settled down and went back to sleep.  Wearing a diaper.

He then woke up clean and dry this AM as if nothing had ever happened.  The Spongebob’s triple wrapped in plastic bags and tossed in the garbage can outside tell a slightly different story.  Blech.

I still think we might return that big box…hundreds of diapers seem like overkill but maybe one small package won’t hurt, lol.

Waiting and hoping.

I know I’m setting myself up for disappointment but I finally broke down and went to HR to discuss our horrid insurance company.   We have Tufts Health Plan, an HMO.  Between the company contribution and our contribution we are paying close to $2,000/month for this plan and they are worthless.

They paid for Monkey’s evaluation at the FX clinic but they refused to pay for any of the therapies that were recommended.  They will not pay for any OT, they will not pay for the autism evaluation, they will not pay for his folic acid, the limits on ST are drastic enough that it’s not even worth using.  Beyond Monkey’s situation they will not pay for IVF but they will pay for the PGD.

Every time we visit the FX clinic it’s a battle.  We get the referrals, they refuse to pay.  We play by their rules and still have to jump through hoop after hoop after hoop.  One of our bills from last June nearly went to collections in December because they couldn’t get their act together.  No one could figure out why they weren’t paying it.  We had to get an extension from the hospital to avoid a black mark on our credit over something that was not our fault.

The insurance company that we had before HR made the switch?  They cover ALL of this.  Every last penny would be covered and our co-pays would be $10 cheaper per office visit.  AND because of the universal healthcare law here in MA I could buy this plan for $12/month less than what the company and I are paying now.

I was, and still am, furious over this.  Being a parent is not easy.  Being a parent to a kid with special needs is even less easy.  We spend all of our waking hours some days managing him. When bedtime arrives we are exhausted just about every night.  On top of all that we spend hours and HOURS of our lives negotiating bureaucratic bullshit.  From the school, from the insurance company. 

It’s enough to make a girl cry and cry I did when I started to explain to the HR director what all of this added stress does to our family.  I told him we need these things.  Monkey needs these things.  We can’t afford to spend what we’re spending on this health plan and not get anything out of it.  We can’t afford to spend what we’re spending on this health plan and then spend an additional $2,000 a month out of pocket on the therapies that other health plans would cover.  

I told him quite frankly that this is going to play a significant role in my decision to stay with the company or not.  Monkey and his development are too important for me to not consider this very seriously.  He asked me to give him time to call the insurance company and try to navigate the situation for me.  We have a small window of time to file an appeal of our latest rejection and he wants to try to avoid that.  So do I, I don’t want to have to hire a freaking attorney to get my insurance company to pay for a medically necessary, diagnostic test for crying out loud.

Argh.  So…I’m waiting and hoping that for just ONCE the insurance company makes this easy.  I am bound to be disappointed though.  *sigh*

Getting paid for a good deed.

Today, the firm that I work for has offered us a chance to spend 4 hours doing community service during work hours.  I totally jumped at the chance.  We are going to be painting apartments for low-income seniors.  Based on the number of volunteers we had we’re set to paint EIGHT apartments in 4 hours.  Yikes!   It should be fun despite how fast we’re going to have to move, lol.

He did it!

He wore underwear allll night and stayed dry allll night.  I am so proud of him!

He was adament last night that he did not want the diaper. “No, No, No!  Back!  Away!”  lol   So we took the plunge two days early. 

Then, after he was up and moving around, he pooped in his boxers.  Ah, well…we’ll get there too.  We had been feeling a bit frustrated about this because the toileting specialist has told us repeatedly that the bowel movements are the easy part.  Just sit them on the potty for 5-10 minutes after a meal and presto chango!  Poop in the potty!

The problem, of course, is that Monkey is not going anywhere near meals.  He’s going before breakfast, he’s going two hours after lunch, he’s going pretty much…whenever.  So. 

I mentioned our potty success this AM to his teacher and the subsequent issue and she reassured us that it’s totally normal ((One of the classroom assistants, who has been doing this for 30+ years actually laughed when we told them what the potty specialist has said)).  She said that the bowel movements are the hardest part for the kids to master, in  her experience.  In 8 years of teaching special needs classes she has surely potty trained more children than we have, lol, so we’re going with that.  He’ll get there when he’s emotionally ready for it.  We know he can sense it and there are no more consistency issues…he just needs to mature a bit.

I think we’ll return that box of diapers and let Monkey spend the money…maybe we can convince him to let us buy him some more underwear too, lol.