Umma | April 30, 2008
As I was sitting here reading through my past FX Memories posts looking for inspiration, it struck me that my posts, though not entirely negative in tone, are memories of how Fragile X Syndrome has impacted our lives negatively in the last 2 years. That does not match with my feeling that our lives are, [...]
Umma | April 28, 2008
Our first stop on this fine* Monday morning was an evaluation with the potty training specialists at Children’s Hospital.
Monkey has a huge fan club at Children’s Hospital, apparently. The NP that we met with today had already heard about how AWESOME he is from the receptionist, lol. It’s really nice to feel so wanted. We [...]
Umma | April 25, 2008
Duhdee and I are considering a major life change. In one of my long winded posts below I discussed the changes that we’re making in our lives and mentioned that one of our long term goals (for when Monkey is grown) is to run a farm/B&B. We’re now re-thinking this. We’re trying to decide if [...]
Umma | April 24, 2008
One of the most difficult aspects of Fragile X for Duhdee and I is managing our expectations when we are planning activities with Monkey. It may be that we’re excessively childish, as I sit here I’m listening to Duhdee scold one of our fish for disturbing a plant in the tank so that seems rather [...]
Umma | April 23, 2008
sweet sauce.
Seriously, I just have the best kid ever*. This week is school vacation week and he is at his happiest and most relaxed. Sure there is the whining each night when I get home but that’s only because he has spent the whole day missing me and he’s, you know, hungry.
He and I have [...]
