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My twist on that once ubiquitous “25 Things” meme on Facebook. This has been in draft form for a while. Obviously. Sometimes it takes me a while to sort things out in my head. We’re nearly 4 years into our journey and I’m still figuring out how I feel. Fragile X syndrome is the . . . → Read More: 25 Things about life with Fragile X if I e-mailed the doctor a link to THIS article in advance of the Friday appointment? I don’t know if I can take any more of his “let’s try x, y and z for a couple of months and re-evaluate” suggestions. After 5.5 years I think the evidence is pretty strongly in favor of . . . → Read More: Would it be too obvious… Monkey boy had another bad sleeping night. He was awake at 12:30 and stayed that way until nearly 4. Duhdee woke him up for school this morning and the second he turned his back Monkey came racing to our bed and crawled under the covers with me and pull the duvet up over his . . . → Read More: Tearful mornings. The start of each new year brings changes. Lately those changes have been related to my health insurance. Two years ago my employer got a great deal on a crappy plan and they jumped at it. One year ago my employer got a less great deal on that same crappy plan minus a few little bits and pieces and increased co-pays. This year my employer got the same less great deal on a really pretty good plan, actually. There was one minor hitch, of course. There is now a $3,000 deductible. THREE THOUSAND DOLLARS need to come out of our pocket as a family, before my health insurance, which I’m already paying MANY THOUSANDS OF DOLLARS for this year, will pick up a penny for anything beyond an annual physical and the associated routine lab tests. THREE THOUSAND DOLLARS before they will pay for any prescriptions, any therapy, any sick visits, any diagnostic tests at those sick visits, etc. Clearly, I’m a happy camper. We’ve had this visit scheduled since last October. It is the follow-up visit to discuss the potential ADHD diagnosis and the ongoing sleep issue, you know the one where he DOESN’T SLEEP, the one which is going drive me insane if we cannot get it under control…*deep breath in**deep breath out*….so we kinda, sorta, desperately need this visit out of pocket or not. It’s a 45 minute appointment. And it’s going to cost us… Anyone want to guess? I’ve been chewing over the information that was shared at the IEP meeting last week and trying to make some decisions. Trying to pick a direction to move…it’s not easy being the grown-up sometimes (heh, please overlook the fact that I do not always exactly act ”grown-up” and tend to throw hissy fits that put . . . → Read More: That IEP meeting last week. The beautiful (but ouchy) Christmas tree got the old heave-ho today. All of the Christmas decorations are now boxed up and stashed in the basement for another year. I love, love, love Christmas but it still feels really nice to have everything put away. Since the tree has vacated the corner of the dining . . . → Read More: I am so MEAN! If it is noted that a child can learn the material and can perform the tasks but isn’t always motivated to perform said task through to completion…that’s not a, not sure how to put this…it’s not a comment on the child and the appropriateness of the goal or placement but an indication that the . . . → Read More: A question for the more experienced IEP moms and dads. I’ve noticed that a lot of people in the last few days are finding the blog by searching “what does 2 to 3 inches of snow look like?” I’m thinking this may be a lot of my southern neighbors who are looking at just such a weather forecast. Please rest assured that this is not . . . → Read More: A public service announcement. This afternoon Duhdee and I will be attending an IEP meeting. Well, actually, it’s what everyone else would call a parent/teacher conference but we live in a special world where everything is governed by our IEP and federal law. Awesome. So, a parent/teacher conference, no big deal! Right? Right. So why do I have . . . → Read More: PTSD much? We really enjoyed our chance to ride the Polar Express in December. Monkey and I skipped the reading of the book and the visit from Santa (we watched from the hall) but it was still a good time. Maybe next year we can convince him to watch the show! .gallery { margin: auto; } .gallery-item { |
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