Basically FX

Living with Fragile X Syndrome

The long awaited, much anticipated, appointment.

Umma | January 21, 2010

6mg of melatonin/night instead of 3mg for the next two weeks and then a another $650, 45 minute, follow-up appointment to discuss a stimulant.  And maybe a cardiologist and sleep-study…
I am … not going to comment further.

Popcorn Vomit

Umma | January 20, 2010

Tell me I’m not crazy (well, I am, but that is another post ENTIRELY!)…it looks like vomit with colored chunks!  Doesn’t it?

Tomorrow, I’ll be back with something worthwhile.  Maybe.  We do have that rescheduled appointment with the developmental pediatrician in the morning.  Then we can, hopefully, leave the vomit behind us.
You have to comment on this one, c’mon [...]

Did you know?

Umma | January 19, 2010

I am a big fan of random thoughts.  Anyone who has known me for any length of time can attest to the fact that my brain…it is not linear.  This is how I end up discussing cremation with my mother on Christmas day and laughing like a loon.  Mom, if you can hold out until [...]

Monkey see, Monkey do.

Umma | January 17, 2010

So far, 2010 seems to be the year of mucus.  Monkey has conjunctivitis, Duhdee’s new bestest friend is the humidifier and my new best friends are my ice packs.  This morning I had to lay down with an ice pack for an hour or so and Monkey, very happily, joined me in the bed and [...]

Positivity for 2010 draining as fast as my bank account.

Umma | January 15, 2010

We’ve traded in our afternoon appointment with the developmental pediatrician in for a morning appointment with our regular pediatrician.  It definitely looks like conjunctivitis…