Basically FX

Living with Fragile X Syndrome

Once upon a time, I had these ideas.

Umma | April 22, 2010

When I was pregnant I had two major fears…autism and mental retardation.  I thought I could handle anything but please, please, please not either of those.  I was terrified of having a child who was “locked in” their own head and unable to bond with me.  I was terrified of having a child who’s life [...]

Eggy.

Umma | April 19, 2010

Monkey has a new friend.  His name is Eggy.  He is blue and he’s named after the egg that the Penguins of Madagascar “egg-sit” in Paternal Egg-Stinct. When you ask him what is in his egg Monkey responds, “Baby duck!”  He carries Eggy around the house with him and will occasionally stop to hug the egg [...]

Follow-up visit.

Umma | April 15, 2010

This morning we had a follow-up visit with the developmental pediatrician who has prescribed Monkey’s medication.  He looked at the weekly reports that the teacher has been filling out.  He was impressed with the depth of information that his teacher provides, she adds explanatory notes rather than just rating Monkey on a scale of 1 [...]

The mystery is solved.

Umma | April 10, 2010

He made some subtle changes in how he pronounced “pissbear” so it evolved to “sbrr.”  Really not much better but I guessed, in desperation, and I got it. It’s “Phineas and Ferb.”  He was thrilled when I said it and even more thrilled when I found the desired clips on YouTube.  I should be a [...]

The budget passed!

Umma | April 9, 2010

The new integrated kindergarten classroom will be established in September of this year!  Nothing is official until we have that IEP in hand with the placement but since the room was sort of designed for him, lol, and he’s been on the list since the fall of 2008…we’re feeling really good about where he’ll be [...]