Umma | April 22, 2010
When I was pregnant I had two major fears…autism and mental retardation. I thought I could handle anything but please, please, please not either of those. I was terrified of having a child who was “locked in” their own head and unable to bond with me. I was terrified of having a child who’s life [...]
Category: Life with Fragile X Syndrome, Non Sequitur |
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Umma | April 19, 2010
Monkey has a new friend. His name is Eggy. He is blue and he’s named after the egg that the Penguins of Madagascar “egg-sit” in Paternal Egg-Stinct. When you ask him what is in his egg Monkey responds, “Baby duck!” He carries Eggy around the house with him and will occasionally stop to hug the egg [...]
Category: Life with Fragile X Syndrome |
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Umma | April 15, 2010
This morning we had a follow-up visit with the developmental pediatrician who has prescribed Monkey’s medication. He looked at the weekly reports that the teacher has been filling out. He was impressed with the depth of information that his teacher provides, she adds explanatory notes rather than just rating Monkey on a scale of 1 [...]
Category: Adventures in medication, Life with Fragile X Syndrome, School |
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Umma | April 10, 2010
He made some subtle changes in how he pronounced “pissbear” so it evolved to “sbrr.” Really not much better but I guessed, in desperation, and I got it. It’s “Phineas and Ferb.” He was thrilled when I said it and even more thrilled when I found the desired clips on YouTube. I should be a [...]
Category: Life with Fragile X Syndrome |
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Umma | April 9, 2010
The new integrated kindergarten classroom will be established in September of this year! Nothing is official until we have that IEP in hand with the placement but since the room was sort of designed for him, lol, and he’s been on the list since the fall of 2008…we’re feeling really good about where he’ll be [...]
Category: School |
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