Fragile X LINKS Group of Eastern Massachusetts
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By Melissa, on May 27th, 2010
We visited with the developmental pediatrician this morning. I spent last night poring over the daily reports we get from the teacher. I had been a little worried that maybe we were only seeing a change because we expected to, you know? I always second guess myself
Our daily reports are a chart, . . . → Read More: We are an anomaly, but we are not crazy.
By Melissa, on May 26th, 2010
Tomorrow morning we have yet another follow-up appointment with our developmental pediatrician. We’re going to have to tell him that…oh, wait…did I forget to mention this? We stopped giving him the medication weeks ago.
Once we switched from the initial twice a day formula to the extended release formula all the benefits seemed to . . . → Read More: Tomorrow…
By Melissa, on May 26th, 2010
I wanted to be sure no one missed this. I don’t think many people go back and read the comments to old posts!
Susan says:
May 25, 2010 at 4:10 pm
As a native Detroiter I am thrilled to welcome all of the FX community to our area. I would like to make a . . . → Read More: Fragile X Conference
By Melissa, on May 25th, 2010
I am not going to provide links, you can pretty much read any of my entries and you’ll see that I speak the truth. I’m overly emotional, I throw hissy fits and my sense of humor is decidedly juvenile. SOME day I’ll be brave enough to post this colon cancer article I saw ages . . . → Read More: I’m not a grown-up.
By Melissa, on May 24th, 2010
**No, this is not a post about the Lost series finale! I stopped watching Lost 4 seasons ago because we missed recording ONE episode and I didn’t want to skip it. Then, they never replayed it so…no more Lost for me. OK, that’s kind of weird, isn’t it? It seemed perfectly logical at the time.**
. . . → Read More: All good things must come to an end, unfortunately.
By Melissa, on May 21st, 2010
So, here is where I tell you all that it wasn’t that bad, everything was fine and I made myself anxious over nothing. And you can all roll your eyes and think that I totally overreact to everything, God! I’ll grin sheepishly at you and mentally make a note to do better next time. . . . → Read More: The homevisit.
By Melissa, on May 20th, 2010
We have a home visit tonight for the 3 year IEP evaluation. The school psychologist, who chairs Monkey’s IEP team, will be coming over to administer the Vineland. 90 minutes of pure fun, I tell you! Gah.
The whole home visit thing cheeses me off, actually. First, the school psychologists do not do home . . . → Read More: Fun, fun, fun!
By Melissa, on May 18th, 2010
I’ve mentioned it before, Monkey is a fan. A big, BIG fan. We started with a few favorite clips and then he taught himself how to navigate to other, completely unrelated, clips. Most of them have been appropriate…trains, cartoon clips, kid’s movie clips, people riding in elevators, monster trucks, etc. Lately he’s been asking . . . → Read More: Fun with YouTube.
By Melissa, on May 17th, 2010
We didn’t call it a party. It was simply a gathering of family and friends sharing presents, snacks and cake (with 6 candles on top.) I did ask him a couple times if we could have a party (while in the midst of one, shhh) and, as my nephew can attest, Monkey walked away without . . . → Read More: So, we had this “thing” yesterday.
By Melissa, on May 15th, 2010
at 12:01 AM, our lives changed forever.
Happy birthday to our sweet, sweet . . . → Read More: Six years ago today…
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