Fragile X LINKS Group of Eastern Massachusetts

Fragile X LINKS Group of Eastern Massachusetts

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Miami 2012!

The registration and schedule page for the 13th International Fragile X Conference, scheduled for July 25th through July 29th, 2012 in Miami, FL, is UP!

You can save $110 by signing up early!

13th International Fragile X Conference

Not all that, a bag of chips and a slice of pumpkin cheesecake.

Yesterday I mentioned that sometimes I start to think that, when it comes to fragile x, “I’m all that, a bag of chips and a slice of pumpkin cheesecake.” Something happened at the conference on Saturday that left me feeling completely humbled though.

Andy Selinger1 mentioned that there was a newly diagnosed family in . . . → Read More: Not all that, a bag of chips and a slice of pumpkin cheesecake.

There is always something to learn.

I’m the first to admit that I don’t know anything everything about fragile x but sometimes I start to slide a little bit towards complacency and think I know enough about this beast we live with and sometimes love1. Honestly, after 5 years and 8 months2 of living with the diagnosis, 4 years and . . . → Read More: There is always something to learn.

13th International Fragile X Conference in Miami, FL!

The National Fragile X Foundation has released details about the upcoming International Conference. It will officially begin at 2pm on July 25, 2012 and last through July 29, 2012. Last year a lot of people left Sunday morning and missed the final Q&A which is a shame, it’s not often that you get a . . . → Read More: 13th International Fragile X Conference in Miami, FL!

The 4th Annual Connecticut Fragile X Conference

Once again Tammy and Andy Selinger are hard at work organizing their one-day Fragile X conference. This year the conference is on Saturday, November 19th at the UConn Health Center in Farmington, CT1. The topic will be “Successful Transitions – Planning for the Education and Employment Years.”

Vickie Sudhalter, PhD and Laurie Yankowitz, Ed.D . . . → Read More: The 4th Annual Connecticut Fragile X Conference

The 2012 International Fragile X Conference

I get a lot of people searching for this! If you haven’t found the information already, let me give you the deets1.

What: The 2012 International Fragile X Conference When: July 25 – 29, 2012 Where: Intercontinental Miami in, where else? Miami2

If you’re curious about what you can expect you can read these . . . → Read More: The 2012 International Fragile X Conference

A guaranteed motivator.

When I’m struggling emotionally, as I’ve been lately, I often have a hard time being motivated to do anything. Cleaning, laundry, showering…ugh. It’s all just so much damn work and I’d rather just, you know, sit and stare at a wall. Yeah. Or the inside of my eyelids…even better. I’ve found a guaranteed fix . . . → Read More: A guaranteed motivator.

One Day Fragile X Conference in Connecticut

The Fragile X Society of Connecticut is hosting a one day conference again this October!  Marcia Braden, Ph.D. (Colorado Spring, CO) Karen Riley, Ph.D. (University of Denver), Don Bailey, Ph.D. (RTI International, NC), Sharyn Lincoln, M.S., CGC (Children’s Hospital Boston) and Jonathan Picker, MB ChB, Ph.D. (Children’s Hospital Boston) will all be presenting.  See . . . → Read More: One Day Fragile X Conference in Connecticut

I must apologize…

I feel as though I’ve given you all the blog equivalent of “Someone I love went to Detroit and all I got was this lousy t-shirt.”  I can do better than that.  I did actually learn stuff.  I did not spend the entire conference at the bar, I swear!

One of the sessions I attended . . . → Read More: I must apologize…

Apparently this isn’t going to just write itself.

A few of you may have heard that there was this thing in Detroit last week.  It was a chance to learn a lot, drink a lot and laugh even more.  I’m not sure how long it’s going to take for me to process all the information that I tried stuffing into my little . . . → Read More: Apparently this isn’t going to just write itself.