Back to what now?

My facebook feed is lighting up this week with picture after picture of kids heading back to school. First, I have to say whaaaa? Caleb just finished 3rd grade two weeks ago, how are you all back in school?? Labor Day is the end of summer, no one should be back in school before the . . . → Read More: Back to what now?

It is IEP season, let’s make them suck less!

“Leonard P. Zakim Bunker Hill Bridge, Boston, Massachusetts“by rolando000 is licensed under CC BY-ND 2.0

This is every parent of a child with special needs’ favorite time of year (and if you buy that, I have a gorgeous bridge for sale in Boston…the Zakim, you’ll love it!) Every year at this time the . . . → Read More: It is IEP season, let’s make them suck less!

All is still not exactly perfect.

Eric and I had an interesting IEP meeting yesterday. We are still having meetings every 4-6 (mostly 6) weeks, per his IEP, even though I’m not sure we need it now. Things have been going so smoothly with his team. We love his teacher, the aid, the specialists and the school. LOVE them! . . . → Read More: All is still not exactly perfect.

The dreaded three year re-determination.

Image from: Shut Up About Your Perfect KidFind more funny IEP goals at Funny IEP Goals: Laugh Your Behind Off in 15 out of 15 Opportunities

I don’t know how it’s possible but it is, once again, time for Caleb’s 3 year re-determination for special education.

For anyone who’s not familiar with the . . . → Read More: The dreaded three year re-determination.

I forgot the very BEST highlight!

And really, it deserves it’s own blog so it’s all good.

During the meeting I was brought to tears by one of his teacher’s comments. I no longer even remember what lead up to this exactly but his teacher was commenting on how they keep pushing him and challenging to do more when she . . . → Read More: I forgot the very BEST highlight!

No one pass out, this is an actual update about CALEB!

Last Thursday we had an IEP meeting, another of the team progress meetings we’ve been having every 4-6 weeks for the last two school years. It’s taken me a bit to get this all together, what with our magical Elf guest and last minute Christmas preparations but may I present…

Our quarterly report.

First, . . . → Read More: No one pass out, this is an actual update about CALEB!

Dunkin Donuts, revisited

Last Monday I mentioned that Caleb had taken a “field trip” to Dunkin Donuts while at school (“Um, we have to tell you something.“) I know for parents of typically developing kids this sounds like a complete waste of school hours but those of us with kids with fragile X know that real life . . . → Read More: Dunkin Donuts, revisited


Caleb has, for a very long time now, exhibited a love of “SCIENCE!” It started with a butterfly unit in preschool and has never really let up. This is one of those things I know would be exactly the same even without fragile X. This boy loves science, he loves the natural world, he . . . → Read More: Science!

Those freaking IEPs.

I think one of the most stressful parts of having a child with fragile X is the whole IEP process. Obviously, we invest a lot of emotion in this process because these are our babies, our prides and joy and we want nothing but the best for them. Then we are thrown into this . . . → Read More: Those freaking IEPs.