I, too, measure up.

Thanks to FXSmom, I now have a penis bling too!  Check it!

 

1. Say one nice thing to a man in your life.

This pretty easy, I have a most awesome hubby so I say nice things to him ALL the time.  I tell him I love him single day, I compliment his cooking, I tell him what a great dad he is and I grab his bum pretty much daily ((sometimes actions speak louder than words with my man)).

2. List at least six ways that you measure success in your life (or for your blog).

A successful me = a happy Monkey, a content hubby and proud parents

A successful blog = comments, linkage and new Fragile X Webring members!

3. Assign this award to six other blogs and leave them a comment telling the blogger that you’ve assigned them this award.

I’m awarding this to…

http://xdadxdad.wordpress.com/

http://lifewithmyxmen.blogspot.com/

http://www.theotherlion.blogspot.com/

http://www.paulafasciano.blogspot.com/

http://www.mymeck.blogspot.com/

http://fragilexpedition.blogspot.com/

As if a cold was not bad enough…

now Monkey is limping!  It’s been a long week here, Monkey has a cold and has woken up coughing 4-5 times each night for the last 4 nights.  He then crawls into bed with us and keeps us awake with his hacking fits.  Yay!

Then, Duhdee got sick.  And let me tell you (so he won’t have to, he’s losing his voice) he is the sickest man this world has ever seen.  He’s so pitiful that Monkey is comforting him.  

Then, I got sick.  Not as bad as my poor boys but enough to leave me feeling fuzzy in the head.  Add the sleepless nights and I’m pretty much a lump of useless flesh.

Then, our youngest dog got a wild hare ((I always thought it was a “wild hair“, shows what I know.)) and leapt off our bed, onto the hardwood floors, skidded wildly out of control and knocked Monkey flat on his bum.  Monkey stood up and is now limping.  There is no visible bruising or swelling but he’s clearly favoring the leg.  We’ll take a look at it this afternoon and decide if a Dr’s visit is in order.  Like we’ll be able to follow Dr’s order anyway which we all know will be “Keep him off it.”  Hahaha, they’re so funny.

Oh, no.

For the last few weeks there has been some construction at the intersection of our street.  This morning the traffic situation was so bad that we elected to take a different route to school. 

Even though we kept telling Monkey we were going to school, I don’t think he really believed us.  He was really excited when we passed the train station and a bit confused when we didn’t stop there so I could go to work but he stayed sitting quietly, observing us.  It wasn’t until we reached the road to turn towards his school that Monkey commented.  Duhdee and I had to surpress giggles when we heard, from the back seat, a quiet “Oh, no.”

Parent/Teacher conference.

We had our parent/teacher conference yesterday afternoon. A few of the team members were unavailable due to illness but we still had a mix of teachers and therapists. We elected to spend the time just talking with each of the participants rather than reading the official report, at some point I should read it I suppose.

Monkey has now been in his current classroom for 6 weeks, which is just insane, it feels so much longer! They are seeing a lot of positive changes in him. The boy they are seeing sounds much more like the little boy we know. Of course they love him, who wouldn’t? They commented on what a sweet, gentle soul he is. They commented on how willing he is to work when motivated. They commented on how bright and manipulative he can be, hee. Yep, they were definitely talking about our boy.

This meeting was so much different than our progress report meeting last February. I actually asked Duhdee, just before we stepped into the room, “So, what do you think? Do butterflies just fly out of his butt?” That was the tone of our last progress report. The boy was brilliant and charming. He had met all of his goals and would be applying for Harvard by age 15! I’ve mentioned before that we went along with it because, really, what parent doesn’t want to hear that? After the cold slap of reality we received in June we had vowed we wouldn’t be taken in again.

We didn’t need to be so worried. This teacher just gets it. We heard lots of cute stories, we heard lots of talk about how well he transitioned into the classroom and how open he now is to learning. We also heard about the more challenging parts of his day and how they are addressing those challenges. We shared ideas, we asked for suggestions on things we can work on at home…it felt like an actual team. Stunning.

The teacher also wasn’t shy about discussing the “harder” questions. We mentioned that we were going to pursue another autism evaluation with a specialist who is familiar with both autism and Fragile X. She wanted to know how we’d feel if he kept that label after the evaluation.

She shared her concerns that his signs are still very much approximations and would not be understood by most people. We acknowledged that his fine motor delays are going to limit how effective he will be with signs and encouraged them to continue down the path of augmentative communication devices ((They’re considering the Go Talk, I need to research but is anyone familiar with it?)).

She asked how we were feeling about next year, we have the option of letting him continue in his current placement for an additional year or continuing on to kindergarten. Duhdee and I are comfortable with him taking another year in his current placement, which she agreed with but she also encouraged us to register him for kindergarten in January ((We need to register in January in order to be able to avail ourselves of the school choice options.)) so that the kindergarten option is still there for us if we change our minds in May.

All in all it was a great meeting. I did ask, just before the meeting broke up if there was anything in the report that would be shocking. I suppose I should have asked if there was anything in there that was contradictory instead since that was the issue last year. A+++ verbal reports and F written reports. The teacher laughed and assured us that there will be nothing surprising in the written report. Now won’t that be a nice surprise, in and of itself?

Keeping up with the potty theme.

We bought Elmo’s Potty Time last spring, hoping it might interest Monkey and jump start our potty training efforts.  It would not be an understatement to say that Monkey hated this DVD.  He wouldn’t even watch it long enough to see Elmo, as soon as he heard Elmo’s voice he would shut the DVD off and/or run from the room yelling “No! No! No!”

Over the last week Monkey started to soften toward the DVD and now he’s full out obsessed with it.  I hear “Emmo!” constantly.  I am more than willing to turn it on upon request so he has seen this DVD about 6,000 times this weekend.

Then on Sunday night, Monkey stripped off his diaper again (in full view this time) and, after throwing it in the garbage, disappeared into his bedroom.  He returned a few minutes later carrying a pair of the long ignored “Cars” underwear I had bought months ago.  He then stood and got them 1/2 way on before he asked for help.  What the heck has gotten into this kid?

We’ll take it but sometimes he makes my head spin!

A terrifying sight.

Yesterday afternoon Monkey walked into the living room, completely naked, and asked me for a ‘per!  When I stood up he turned to walk to his room and I got an eyeful of a rather dirty bottom.  Ack!

“Monkey, where is your diaper?!?”

He ignored me and continued into his room.  I quickly got him cleaned up (I’m not sure I’ve ever moved quite that fast, actually) and began searching for that messy diaper.  I checked our bedroom, including under the bed, nothing.  I checked the bathroom, nothing.  I checked Monkey’s garbage and his laundry hamper, nothing!   Ack!  Finally, I went to the kitchen garbage can and found it safely tucked inside.  Phew!

I knew it couldn’t stay hidden long, lol, but my, oh my, I was nervous for a few minutes.

Keep away?

I wonder where he learned this game.  Monkey totally took me by surprise earlier today by holding the remote control for our television in my direction and then snatching it away and laughing at me when I tried to take it.  He then proceeded to offer it and snatch it away, laughing hysterically each time, until I finally gave up.  Little booger.

Amazing.

Amazing is currently the most overused word in our house.  We’ve used it about Monkey’s behavior at family gatherings, his newly emerging participation at school and his always creative communication strategies.  He really just seems to be on a roll these days.

Monkey had yet another amazing day yesterday.  The three of us stayed home all day and Great Grampy joined us for the afternoon.  Monkey was still rather shy at the beginning but he did fairly well.  He mostly helped Duhdee cook while Great Grampy and I sat and chatted about his life growing up and all the different places he lived and worked.

After dinner ((Duhdee’s rack of lamb was great!  He’d never cooked it before but he followed Alton Brown’s recipe and it was very tasty.)), however, there was an amazing transformation.  Monkey brought back a piece of his Thomas Trackmaster train track sets.  Duhdee was sitting next to Great Grampy and we thought Monkey was taking the track to him but Monkey made it very clear he wanted Great Grampy to have it.  He brought back a few more pieces and continued to hand them to Great Grampy.   We moved down onto the floor and Great Grampy helped Monkey set up a track.  Monkey then began handing the Thomas engine and various cars to Great Grampy to assemble.  It was amazing!  The child who normally tries to distract Great Grampy from looking at him ((Typically, he will point at the sky (or ceiling) to get Great Grampy to look up.  Outside he is hoping there will be an airplane to distract Great Grampy, I’m not sure what he thinks Great Grampy will find on the ceiling though.)) was sitting only inches away from him and making eye contact and being very demanding, actually.  It totally made our day and Great Grampy looked pretty pleased himself.















Happy Thanksgiving!

I’m sure most of you are gearing up for your celebrations.  We are 1/3 through our Thanksgiving holidays already!  Last Saturday, my mother hosted Thanksgiving dinner.  Monkey had a great time and was very relaxed despite the crowd.  He has come to expect crowds when we visit my parents and so it doesn’t seem to upset him any more.  4 of my 5 nieces/nephews were there along with my 2 youngest cousins (they’re the same age as the nieces/nephews so they get lumped in with them.)  Monkey really loves his cousins, the girls all dote on him and he follows them around and tickles them.  It’s very cute. 

Monkey even wrestled with my grandfather over his cane.  No worries, Papa was sitting down and instigated the battle by poking Monkey with it (the troublemaker) and Monkey won.  Later he went back and grabbed Papa’s cane and handed it to him so they could have a repeat match.  I’m pretty sure Monkey let Papa win that time.

Tomorrow, Duhdee’s grandfather will be joining us for rack of lamb.  We’ll host Duhdee’s family for “Thanksgiving”  the second weekend of December…we really like to spread out the feasting!  Some day when we build our weekend place we’ll host both families at one giant meal.  I’m really looking forward to that.  In the meantime this works.

Happy Thanksgiving to all!