Fragile X LINKS Group of Eastern Massachusetts

Fragile X LINKS Group of Eastern Massachusetts

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Riding the rails.

There are so many things I wouldn’t have known if I didn’t have my little Monkey to show me. One of those is this, I love trains. I never knew that until I had a train obsessed, little man in my life and I might have never known it if I’d gotten that little girl . . . → Read More: Riding the rails.

Embarassing yet adorable

Monkey as been doing this thing for a little while. I rather thought it would be a passing phase but it seems to be escalating.  We’ve not really made any effort to curb this thing because it’s quite adorable but it can be a bit cringeworthy at times. There are times where he’ll do . . . → Read More: Embarassing yet adorable

Lesson learned. School, Day 11.

This time it is not Duhdee and I learning a lesson, how novel!

It seems that one of the classroom assistants brings a coffee from Dunkin Donuts with her each morning.  It seems that each day, for the last two days, her coffee was going missing before she was able to finish it.  It . . . → Read More: Lesson learned. School, Day 11.

His daredevil gene emerges.

I am not, by any stretch of the imagination, a daredevil. I am scared of heights, claustrophobic, I hate being too hot (or too cold), I don’t like bugs and let’s not discuss spiders. I get my adreneline rushes by working on complex legal transactions, get the picture?

Duhdee on the other hand loves anything with . . . → Read More: His daredevil gene emerges.

Progress has been made. School, day 9.

We realized, last week, that none of the tabletop activities to choose from in the mornings qualified as a “sensory” activity. They have been putting out coloring activities, matching activities, puzzles, etc. These are all things that require focus and regulation. These are not good activities for a child who is struggling with the . . . → Read More: Progress has been made. School, day 9.

In which I admit defeat and, yet, still win.

When we were at the conference we purchased an indoor swing. Monkey loooooves to swing so we’d been considering one for a while. One look at the “special conference pricing” and we were sold. Over a month and many, many frustrating phone calls later1 and we were the proud owners of this:

Not . . . → Read More: In which I admit defeat and, yet, still win.

Day 5

“No plan of battle ever survives contact with the enemy.” Heinz Guderian

It’s day 5 and I think we’ve got it.  Starting a new routine, even one we plan for, doesn’t always go perfectly right from the start but I’m hopeful we’ve figured it out for this year.

He walked into class easily.  He’s still . . . → Read More: Day 5

A new local parent group!

If you’re in the eastern Massachusetts area I’d love to invite you to check out a brand new resource group for families affected by fragile X syndrome!  There is a short form at the bottom of the page where you can sign up to receive updates from the group and if you want to . . . → Read More: A new local parent group!

Another lesson learned…

M&Ms will convince Monkey to rocket straight into his classroom but goooooood luck getting that little baggy out of his hands and getting him to check into class for the day once you hand it over. 

Goodness gracious that boy is strong1!

But I still won in the end, lol. [↩]

Let’s talk about school.

What do we know two days into the year?

Monkey is going to really like his teacher, he already likes her well enough but given time he is going to love her.  I can already see it in how he reacts to her.  Yay! Monkey’s teacher “gets” him already and she is working so . . . → Read More: Let’s talk about school.