This one shouldn’t hurt anyone’s head.

I have another grumpy-ass post eating at my brain but I am going to stick to fluff today. I need a break from me…

Monkey has been working really hard at mastering sight words at school. His teacher sends home copies of the books he is able to read so we can read them . . . → Read More: This one shouldn’t hurt anyone’s head.

Does Illness Define a Child?

I just read this article on the Huffington Post and wanted to share it. I think this is one of the reasons I have such a love/hate relationship with fragile x:

If you could somehow erase the condition, would you be left with the same child? And if you could avoid having a child . . . → Read More: Does Illness Define a Child?

I confuse myself.

Sometimes I think my depression diagnosis is just flat wrong. I think a lot of people might think that because I’m the queen of the Public Face. I am good at hiding the fact that often I can’t say what I need to, I harbor unshareable thoughts and put out a shiny face because . . . → Read More: I confuse myself.

Yes, yes, yes.

This is just precisely what I want to tell newly diagnosed parents…

Our little chatterbox.

This past Saturday Duhdee, Monkey and I went to dinner with some new friends. The little girl, N, has Down’s Syndrome and is in the general education class that Monkey goes to for inclusion.

We met N’s mom over the summer, they just moved to the district and N was at the same school . . . → Read More: Our little chatterbox.

I love a new blog!

So, one of my new fragile x mom friends (And I’m only using this distinction once to explain the connection. In the future she shall just be referred to as my friend or my friend who says f*ck a lot1 or maybe even just Kathleen if I’m feeling nutty) recently confessed that she’s been . . . → Read More: I love a new blog!

13th International Fragile X Conference in Miami, FL!

The National Fragile X Foundation has released details about the upcoming International Conference. It will officially begin at 2pm on July 25, 2012 and last through July 29, 2012. Last year a lot of people left Sunday morning and missed the final Q&A which is a shame, it’s not often that you get a . . . → Read More: 13th International Fragile X Conference in Miami, FL!

Two Gates.

Monkey’s new school has a very small playground/courtyard between it and the street. It has been fenced in for safety purposes since the kids stay outside until the first bell rings1and has two gates. Here, let me illustrate:

On day one we walked through the main gate and you know what that means, . . . → Read More: Two Gates.

This is what happens when you work to a student’s strengths…

Now that we’ve had the most amazing IEP meeting ever, the school has already started implementing the changes we discussed! We haven’t even signed the IEP yet but there’s no doubt we will…especially since we’re already seeing the benefits.

First, let me start with a story. Yesterday, Monkey and I were organizing his toys . . . → Read More: This is what happens when you work to a student’s strengths…